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non convulsive absence status epilepticus
Sun, 08/25/2013 - 21:42Comments
Re: non convulsive absence status epilepticus
Submitted by cancun01 on Mon, 2013-08-26 - 22:09
Re: non convulsive absence status epilepticus
Submitted by just_joe on Tue, 2013-08-27 - 15:48
Cancun
I think the diary will help you especially if you make note in the pad in it.
Now as for seizures and being tired. A seizure does drain energy. It doen't matter which seizure it is whether it is a partial seizure or a tonic clonic or any other type they all drain energy. Back when I was diagonsed they had names of seizures. Grand mal Pettit mal along with others many seizure types can can land in different names of epilepsy. I also did a study because I wanted to know what epilepsy was and the doctors would not answer my questions they would and did talk to my mother.
All a seizure is is an electrical impulse hitting wrong in the brain which causes a chain reaction. That chain reaction is the seizure. Think of lining up dominos all lined upthey are fine until you tap one and it hits the next which hits the next causing them all to fall down. Thats a chain reaction. Your AEDs would be like a finger going between dominos keeping them from hitting which stops the chain reaction. The electrical activity is also energy so every seizure drains energy.
As for knowledge about epilepsy back when I was diagnosed there was no computer no i-pad, we hadn't reached the moon. I wanted answers to my questions. In english class we had to write an essay. That essay gave me the opportunity do do the research which I did. My essay got an a/b. I ended up reading it in front of all of my english teachers classes. My science teacher heard about it and you guessed it it was read to all of his classes. The vice preicable heard about it and you guessed it the s=essay was read to the entire student body in the next assembly. I went by to see Mr Ramey 5 years later and I saw the essay framed on his wall. I found out that they used ti 2-3 times each year to inform studenta and everybody about what epilepsy is what can be done while people are in seizures. That not all seizures are convulsive and that sometimes student being written up for day dreaming could be having seizures. SO I was like you wanting to know more about what I had
Hope you get answers and the keppra helps
Joe
Cancun
I think the diary will help you especially if you make note in the pad in it.
Now as for seizures and being tired. A seizure does drain energy. It doen't matter which seizure it is whether it is a partial seizure or a tonic clonic or any other type they all drain energy. Back when I was diagonsed they had names of seizures. Grand mal Pettit mal along with others many seizure types can can land in different names of epilepsy. I also did a study because I wanted to know what epilepsy was and the doctors would not answer my questions they would and did talk to my mother.
All a seizure is is an electrical impulse hitting wrong in the brain which causes a chain reaction. That chain reaction is the seizure. Think of lining up dominos all lined upthey are fine until you tap one and it hits the next which hits the next causing them all to fall down. Thats a chain reaction. Your AEDs would be like a finger going between dominos keeping them from hitting which stops the chain reaction. The electrical activity is also energy so every seizure drains energy.
As for knowledge about epilepsy back when I was diagnosed there was no computer no i-pad, we hadn't reached the moon. I wanted answers to my questions. In english class we had to write an essay. That essay gave me the opportunity do do the research which I did. My essay got an a/b. I ended up reading it in front of all of my english teachers classes. My science teacher heard about it and you guessed it it was read to all of his classes. The vice preicable heard about it and you guessed it the s=essay was read to the entire student body in the next assembly. I went by to see Mr Ramey 5 years later and I saw the essay framed on his wall. I found out that they used ti 2-3 times each year to inform studenta and everybody about what epilepsy is what can be done while people are in seizures. That not all seizures are convulsive and that sometimes student being written up for day dreaming could be having seizures. SO I was like you wanting to know more about what I had
Hope you get answers and the keppra helps
Joe
Re: non convulsive absence status epilepticus
Submitted by just_joe on Mon, 2013-08-26 - 16:33
Cancun
Welcome
Your post was interesting when read. As for vertigo seizures I can say nothing. I have never had them. The names of the epilepsy I have are Grand mal,Pettit mal and Focal motor. As for types of seizures mine range from auras to a grand mal seizures full ocnvulsion. When I was younger most of my seizures were focal motor which can range from partial seizures to complex partial to full blown convulsions without blacking out. I could see hear and understand everythng goign on around me.
Now I saw your post and it is rare for an epileptic to have non convulsive status epilepticus. That would make me keep wondering why I can't get focused. I am glad they took care of you and I know that it had to have been wellllll can't use those words so difficult for you and your husband.
I have had ststus epilepticus The convulsive one. I was having 40 seizures and hour. I passed out after the third seizure and came out of a coma 3 days later. I was told I had been taken out of it and when Mom ws coming to get me I went back into it. Generally speaking most people can get out without much problem but going into status twice rarely do theyy come out without having problems. I can say that if it weren't for a mothers prayer I woudn't be here today.
Now th medicine you are taking is one of the best medicines I have taken for seizure control. The list of medications I have been on would be long since I have taken most fo them on the poster in my neuros office. He knows it tooKeppra has reduced my seizure count from 2-3 a week to maybe 4 a month. Keppra has also reduced the length of time in the seizure and reduced the time it takes to get back to normal. My complex partial seizures used to last 1-2 minutes and focus time would be 15-30 minutes. Keppra has really reduced those times to 5-10 seconds for the seizure and ambe1-2 minutes to focus. I have has seizures while talkingon he phone and the people I was talkig to knew nothing about them. I have also had seizures while people were here and talking and they didn't know I had them.
You might want to look at the My Epilepsy Diary. By using it your can keep track of issues medications and other things and it can be sentto your neuro. He might be able to find possiable triggers which can cause your seizures.
Hope this helps
Joe
Cancun
Welcome
Your post was interesting when read. As for vertigo seizures I can say nothing. I have never had them. The names of the epilepsy I have are Grand mal,Pettit mal and Focal motor. As for types of seizures mine range from auras to a grand mal seizures full ocnvulsion. When I was younger most of my seizures were focal motor which can range from partial seizures to complex partial to full blown convulsions without blacking out. I could see hear and understand everythng goign on around me.
Now I saw your post and it is rare for an epileptic to have non convulsive status epilepticus. That would make me keep wondering why I can't get focused. I am glad they took care of you and I know that it had to have been wellllll can't use those words so difficult for you and your husband.
I have had ststus epilepticus The convulsive one. I was having 40 seizures and hour. I passed out after the third seizure and came out of a coma 3 days later. I was told I had been taken out of it and when Mom ws coming to get me I went back into it. Generally speaking most people can get out without much problem but going into status twice rarely do theyy come out without having problems. I can say that if it weren't for a mothers prayer I woudn't be here today.
Now th medicine you are taking is one of the best medicines I have taken for seizure control. The list of medications I have been on would be long since I have taken most fo them on the poster in my neuros office. He knows it tooKeppra has reduced my seizure count from 2-3 a week to maybe 4 a month. Keppra has also reduced the length of time in the seizure and reduced the time it takes to get back to normal. My complex partial seizures used to last 1-2 minutes and focus time would be 15-30 minutes. Keppra has really reduced those times to 5-10 seconds for the seizure and ambe1-2 minutes to focus. I have has seizures while talkingon he phone and the people I was talkig to knew nothing about them. I have also had seizures while people were here and talking and they didn't know I had them.
You might want to look at the My Epilepsy Diary. By using it your can keep track of issues medications and other things and it can be sentto your neuro. He might be able to find possiable triggers which can cause your seizures.
Hope this helps
Joe