Hi!! I am new to this site. I am hoping to find others like me...or maybe to help or giv any info I have learned. I was diagnosed with vertigo seizure disorder when I was 5 yrs old....I would get dizzy...room spinning etc. which would then result in vomiting. I was put on Dilantin which I took until I was 8..I had severel EEGs during this time...and they were all abnormal. Stress always triggered yhe seizures. My parents got divored when I was 5. My mom took me back and forth to neurologists. Then my mom moved out of state when I was 8....I lived with my dad. He had a hard time believing the diagnoses....so I was not treatetd from 8 yrs old to 36 yrs old...at 36 I had lived with vertigo seizures several times a month...then one morning 30 yrs later I woke up one morning...did not know my name....where the bathroom was in my house....what year it was...my husband rushed me to the ER...they called my current nerologist in and he gave me a shot of Adavan....and I snapped out of it...by yhat time I had been having a on going seizure for more than 6 hours..I wad diagnosed with non convulsive status epilepticus......put on Keppra 2000 mg a da...no seizures for almost 2 yrs until a month ago....I had another one....the same thing...I joined this site with the hopes of finding others with a diagnoses like mine....my doc says it is rare...no convulsions.....any and all replys and responses will be much appreciated.