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Nice To Meet You! I Am Jonzen.

Sun, 10/29/2006 - 09:09
Hello to you! I found this site yesterday afternoon and spent hours reading threads on various subjects. Now it is time to introduce myself to you all. I have had seizures since I was 15. A high fever may have caused them. I have been on medication since then, and I am 55 now. I cannot remember what was given me in those early days, one year of high school is a total blur, but now I take 300 mg Dilantin daily and have for....30+ years?! I haven't had any grand mals for many years, but petit mals, or whatever we should call them, are fairly common to me. I read about loss of memory in many of us here with E. Do you think this is caused by the medication or E itself?? I sought a place where there was a sharing of information on E because I often feel so weird and odd and alien. I know of no one else who has this. And the memory loss is becoming very noticeable and problematic. As an artist, at my openings in the gallery, I am expected to remember the names of my patrons and friends, right? I cannot often even remember people let alone names! Once I could not remember the name of my Mother! On Friday afternoon I had invited 6 prominent women to my loft for tea. I was doing the final preparations and one guest arrived early, someone I had only just met through an interview a few week's earlier..... I went into a petit mal.....could not speak, could not explain what was happening to me......and she kept asking me what was wrong.....which made things worse for me, prolonging the condition......then the others began to arrive! I could not speak. A nightmare that I know many of you understand well. I am depressed about it still this morning. I feel that I live with a kind of monster who allows me to go about my life within bounds, often we live in peace.....and then sometimes the monster comes out and takes away my ability to speak, to read, to understand. And then I am "foggy" and "thick" for sometimes days afterward. I am an artist, I live alone (with a standard poodle named Phoebe) on top of a rocky mountain in the high cascades of central Oregon. My work allows me to be alone most of the time. I do not do well in crowds of people who want my attention. I can go to Costco alright! Is this similar for you? Too many questions I know. I will withdraw now and wait hopefully for some response from you all. Again, I am very happy to find you and meet you. Namaste, Jonzen

Comments

Re: Nice To Meet You! I Am Jonzen.

Submitted by Terri N. on Mon, 2006-10-30 - 12:10
Hi Jonzen: You responded to my letter about memory loss and I wrote back to you. Hope you have seen it. I live in S.E. Washington, so we are pretty close. I'm also in my 50's. I have a tiny toy poodle, Silky. Are you man or woman? I, too, sometimes feel weird and odd. I've learned here that others have this same feeling, so we're not alone. Could it be that you were stressed about having these ladies coming to your loft and that brought on the seizure? I am really trying to combat stress by turning it over to God. Try to realize He is in charge, not you, and ask Him to take over and then YOU must LET HIM! Give up the stress and think about the positive...you are enjoying your abilities as an artist and sharing them with others. Other people out there need to see your smile to make their day, you may be God's gift to them today! Have a great week this week! Love yourself and don't dwell on the negative thoughts and worry. Your body will respond and go there... instead say to yourself: "I am a happy competent person and I will be less affected and more effective!" Please respond. I care. Terri N.

Re: Re: Nice To Meet You! I Am Jonzen.

Submitted by Jonzen on Mon, 2006-10-30 - 19:27
Thank you Terri N. for the very nice response! To answer your question, I am male. I appreciate your suggestions having to do with stress management and release. I agree and practice the releasing of stress whenever it comes up. I think I went into my petit mal because I was tired from being sick with a chest cold all week and, yes, I was excited about the ladies arriving.......but also, one guest had come a bit early and her spirit is very large.....she is loud and wonderfully expressive, and she was asking me many questions as I was trying to prepare for the arrival of the others......it seemed to push me over the edge. I called each person the next day to thank them for attending, and to apologize for my seizure episode. Each person was so kind and so supportive of me, I felt greatly loved. This is the kind of caring I like to share with others also. I honor all spiritual beliefs, I have been practicing Buddhism for many years now. I find the same truths reside in all beliefs. I am so happy to meet you Terri N. I greatly appreciate you writing to me and making me feel welcome here on this forum. I would like to learn more about you, if you would consider sharing a bit of your story with me I would be honored. Sending you a warm smile, Jonzen "Be kind to all that lives"

Re: Re: Re: Nice To Meet You! I Am Jonzen.

Submitted by Terri N. on Wed, 2006-11-01 - 13:11
Hi again Jonzen: Good to see your response. As you mentioned, I'm sure the ladies were supportive and understanding...but I know it's very hard to go thru that. Let me know what you would like to know more about me by emailing me at tnorwick@charter.net Have a great day! Love, Terri N.

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