Newly diagnosed with Temporal Lobe Seizures

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Searching the web only brings more questions. June 2013 I fell in our empty pool and rang my bell pretty hard. I was diagnosed with a concussion 3 days later when the right side of my face and body went tingly numb, I lost the ability to comprehend my words and I had slurred speech, like I was having a stroke or TIA. The drooping lasted only 20 minutes or so. My MD stated it could be concussion symptoms. I continued to have strange tingling, burning, and "numbing" daily, starting at the center of my skull and traveling down the right side of my face through to my shoulder. I was a migraine sufferer so my MD sent me to a neurologist. The neurologist insisted that the numbing was being caused by my migraines. However, I believed them to be separate. After a year, and several trials of migraine medications I no longer had migraines, yet the tingling sensations continued daily. Finally, my neurologist sent me for an EEG where I had positive results for seizures. The neurologist's nurse phoned and informed me I was having left sided seizures, to start medication, and phone in two weeks to report how the medication was doing.

Needless to say I'm disapointed in how I recieved the information and I have several questions yet unanswered. After 4 phone calls, I finally found out that he has diagnosed me with Temporal Lobe Seizures, however in all my reading my symptoms are definately more towards Parietal Lobe seizures. I don't twitch, lose my concious thoughts or any of the other symptoms. Depending on where the seizures are taking place, could I be diagnosed with one lobe when in actuality the other lobe is being affected? Or do the symptoms not matter? Obviously, because of the lack of comunication from my lovely neurologist, I do not know where in the temporal lobe my seizures are happening. Parietal lobe symptoms are exactly how I would describe mine.

I have started Keppra, is this something I'll be on the rest of my life? Do these type of seizures progress? Any help would be appreciated.

best regards,

Shannan

Comments

You are trying to compare 2

Submitted by just_joe on Tue, 2014-10-14 - 17:27

You are trying to compare 2 different things understand that the EEG shows where in the brain the seizure activity is. I have seen many people comming in here stressed because they want to have a seizure during their EEG. The EEG can pick up seizure activity even without a person having a seizure. It is also possiable that a person can have seizures and epilepsy without the EEG showing anything.ie. a normal EEG. Rather then stress yourself out just do waht the nurse said. Take the neds and see them in a few weeks. They started you on a dosage which can be low so it could be raised if you are still having problems. It does take time to get dosages set because your body has to get used to the medications and that generally takes 2 weeks. Each dosage change should be looked at in the same way 2-4 weeks. If things are going good they then want to see you in 3-6 months. BEEN there done that. Many times As for keppra it has become the go to medication for many people. I have been on it and it not only reduced the number of seizures I was having but it also shortened the time in those seizures and the time to focus (get back to normal)_ It has been the best medication I have used in the 50+ years I have been living and dealing with epilepsy. As for The neurologist's nurse phoned and informed me I was having left sided seizures, to start medication, and phone in two weeks to report how the medication was doing. After hearing the nurse fine did you get the meds and start taking them? Or did you call and want more information? There are several seizures which can be associated with TLE So you might want to look at them all before you get all stressed out. Understand that there are 40+ different kinds or types of seizures. How many different kitypes of seizures can land in temperal lobe epilepsy????? I can have a mirad of different seizures Grand mal (tonic clonic) petite mal (absence seizures) oh but lets not forget focal motor epilepsy (focal seizures ) If those go generic I can have a seizure which looks like a grand mal but I am fully concious and knw whats happening. You see I was diagnosed long before they came up with types of epilepsy and types of seizures. I have the worst the slightest and many inbetween them. Relax and do what you were tlod to do. Take your meds as directed. If they are to be taken 2 times a day those times should be 12 hours apart. Otherwise you mihgt have breakthru seizures.

You are trying to compare 2 different things understand that the EEG shows where in the brain the seizure activity is. I have seen many people comming in here stressed because they want to have a seizure during their EEG. The EEG can pick up seizure activity even without a person having a seizure. It is also possiable that a person can have seizures and epilepsy without the EEG showing anything.ie. a normal EEG. Rather then stress yourself out just do waht the nurse said. Take the neds and see them in a few weeks. They started you on a dosage which can be low so it could be raised if you are still having problems. It does take time to get dosages set because your body has to get used to the medications and that generally takes 2 weeks. Each dosage change should be looked at in the same way 2-4 weeks. If things are going good they then want to see you in 3-6 months. BEEN there done that. Many times As for keppra it has become the go to medication for many people. I have been on it and it not only reduced the number of seizures I was having but it also shortened the time in those seizures and the time to focus (get back to normal)_  It has been the best medication I have used in the 50+ years I have been living and dealing with epilepsy. As for  The neurologist's nurse phoned and informed me I was having left sided seizures, to start medication, and phone in two weeks to report how the medication was doing.   After hearing the nurse fine did you get the meds and start taking them? Or did you call and want more information?  There are several seizures which can be associated with TLE  So you might want to look at them all before you get all stressed out. Understand that there are 40+ different kinds or types of seizures. How many different kitypes of seizures can land in temperal lobe epilepsy?????  I can have a mirad of different seizures Grand mal (tonic clonic) petite mal (absence seizures) oh but lets not forget focal motor epilepsy (focal seizures ) If those go generic I can have a seizure which looks like a grand mal but I am fully concious and knw whats happening. You see I was diagnosed long before they came up with types of epilepsy and types of seizures. I have the worst the slightest and many inbetween them. Relax and do what you were tlod to do. Take your meds as directed. If they are to be taken 2 times a day those times should be 12 hours apart. Otherwise you mihgt have breakthru seizures.

You are trying to compare 2 different things understand that the EEG shows where in the brain the seizure activity is. I have seen many people comming in here stressed because they want to have a seizure during their EEG. The EEG can pick up seizure activity even without a person having a seizure. It is also possiable that a person can have seizures and epilepsy without the EEG showing anything.ie. a normal EEG. Rather then stress yourself out just do waht the nurse said. Take the neds and see them in a few weeks. They started you on a dosage which can be low so it could be raised if you are still having problems. It does take time to get dosages set because your body has to get used to the medications and that generally takes 2 weeks. Each dosage change should be looked at in the same way 2-4 weeks. If things are going good they then want to see you in 3-6 months. BEEN there done that. Many times As for keppra it has become the go to medication for many people. I have been on it and it not only reduced the number of seizures I was having but it also shortened the time in those seizures and the time to focus (get back to normal)_ It has been the best medication I have used in the 50+ years I have been living and dealing with epilepsy. As for The neurologist's nurse phoned and informed me I was having left sided seizures, to start medication, and phone in two weeks to report how the medication was doing. After hearing the nurse fine did you get the meds and start taking them? Or did you call and want more information? There are several seizures which can be associated with TLE So you might want to look at them all before you get all stressed out. Understand that there are 40+ different kinds or types of seizures. How many different kitypes of seizures can land in temperal lobe epilepsy????? I can have a mirad of different seizures Grand mal (tonic clonic) petite mal (absence seizures) oh but lets not forget focal motor epilepsy (focal seizures ) If those go generic I can have a seizure which looks like a grand mal but I am fully concious and knw whats happening. You see I was diagnosed long before they came up with types of epilepsy and types of seizures. I have the worst the slightest and many inbetween them. Relax and do what you were tlod to do. Take your meds as directed. If they are to be taken 2 times a day those times should be 12 hours apart. Otherwise you mihgt have breakthru seizures.

Newly diagnosed with Temporal Lobe Seizures

Comments

You are trying to compare 2

Submitted by just_joe on Tue, 2014-10-14 - 17:27

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