Newly Diagnosed looking for support

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Hey all~

I am 27 year old male, recently diagnosed with multifocal seizures. I had two abnormal EEG's the past week. I am really worried and scared that this could be stemming from some sort of brain tumor. I have had these weird feelings for the past 2 years and no blood test or professional doctor could ever tell me what was happening. So about 8 months ago I got an MRI and it was normal.

Do abnormal EEG's showing seizure activity in multiple parts of the brain always mean multiple tumors? I am hoping that since I have had these weird sensations for over 2 years and had a clean MRI less than 8 months ago, that something then would of shown up. Sorry, I am just really worried to have been officially diagnosed with multi focal seizures. I am scheduled for another MRI, though my neurologist didn't think it was 100% necessary. My MRI is next week, just looking to see what people think who have also had abnormal eeg readings showing multi focal seizures.

Is this something hard to live with? Can I live a happy life with this? Will medication help?

Thanks

Comments

No abnormal EEG's just mean

Submitted by just_joe on Fri, 2014-08-01 - 11:35

No abnormal EEG's just mean seizure activity in different areas of the brain. They may have nothing to do with tumors. I had seizure activity in more then 1 lobe of my brain. The EEG showed where in the brain the activity came from. The doctors had already looked at the MRI of teh1960's and said it was normal. By seeing where the seizure activity came from they went back and checked those areas closer and they found scared rain tissue which was caused by a hemmorage to the brain, That hemmorage was caused by a blow to my head. Additional testing for a procedure was done around 2004-5 and Doc said that blow was done between the age of 6-8. I did hit my head back then but the docs were more worried about the 4 teeth that were knocked out and the gask in my tongue and cheeck which took 32 stiches. Anything can cause seizure actifith. Like tissue that didn't grow right. All a seizure is is an electrical impulse going off wrong in the brain causing a chain reaction. Medications are created to keep those electrical impulses from causing the chain reaction from happening. Generally a focal seizure starts in one area of the brain. With me it starts in my right hand. Which means the seizure activity is in the left lobe of my brain. One side of the brain controls the other side of the body. A focal seizure can generalize. Meaning it covers the entire brain and by doing that they become convulsive, Those seizures can and do look like a grand mal seizure. The main difference is the person having it is concious and sees, hears and knows something is happening. When mine did I saw the fear in peoples faces. I heard them I knew who told people to get the nurse. I haven't had a convulsive seizure since 1970, But I still have focal seizures as well as partial and absence seizures from time to time. Yes you can live with focal epilepsy. Yes you can have a happy life. Yes medication helps. There are medications today that have been reducing the number of seizures I was having. The same medicatins have shortened the length of time in those seizures. It has also reduced the time to focus (get back to normal) The seizures I have now are seconds in length and the focus time is also in seconds. Before those seizures were lasting 2-5 minutes and the focus time was 15-45 minutes and there were also times I had to crash and sleep before getting back to normal. As Amy Jo postedyou need to learn about your seizures and read about triggers. There are triggers that can cause seizures in some people. Stress is one of them. Also lack of sleep. With me getting to hot to fast causese some of mine. I would also suggest yo uget the My Epilepsy Diary which can be found on this site. look under the Get Help section. Watch the video which tells yo uhow to use it . Give your neuro permission to bring it up he can look at the graphs and other information. By doing that he can come up with medications, dosages and procedures that can help control your seizures. I hope this helps and you get your seizures under control

No abnormal EEG's just mean seizure activity in different areas of the brain. They may have nothing to do with tumors. I had seizure activity in more then 1 lobe of my brain. The EEG showed where in the brain the activity came from. The doctors had already looked at the MRI of teh1960's and said it was normal. By seeing where the seizure activity came from they went back and checked those areas closer and they found scared rain tissue which was caused by a hemmorage to the brain, That hemmorage was caused by a blow to my head. Additional testing for a procedure was done around 2004-5 and Doc said that blow was done between the age of 6-8. I did hit my head back then but the docs were more worried about the 4 teeth that were knocked out and the gask in my tongue and cheeck which took 32 stiches. Anything can cause seizure actifith. Like tissue that didn't grow right. All a seizure is is an electrical impulse going off wrong in the brain causing a chain reaction. Medications are created to keep those electrical impulses from causing the chain reaction from happening. Generally a focal seizure starts in one area of the brain. With me it starts in my right hand. Which means the seizure activity is in the left lobe of my brain. One side of the brain controls the other side of the body. A focal seizure can generalize. Meaning it covers the entire brain and by doing that they become convulsive, Those seizures can and do look like a grand mal seizure. The main difference is the person having it is concious and sees, hears and knows something is happening. When mine did I saw the fear in peoples faces. I heard them I knew who told people to get the nurse. I haven't had a convulsive seizure since 1970, But I still have focal seizures as well as partial and absence seizures from time to time. Yes you can live with focal epilepsy. Yes you can have a happy life. Yes medication helps.  There are medications today that have been reducing the number of seizures I was having. The same medicatins have shortened the length of time in those seizures. It has also reduced the time to focus (get back to normal) The seizures I have now are seconds in length and the focus time is also in seconds. Before those seizures were lasting 2-5 minutes and the focus time was 15-45 minutes and there were also times I had to crash and sleep before getting back to normal. As Amy Jo postedyou need to learn about your seizures and read about triggers. There are triggers that can cause seizures in some people. Stress is one of them. Also lack of sleep. With me getting to hot to fast causese some of mine. I would also suggest yo uget the My Epilepsy Diary which can be found on this site. look under the Get Help section. Watch the video which tells yo uhow to use it . Give your neuro permission to bring it up he can look at the graphs and other information. By doing that he can come up with medications, dosages and procedures that can help control your seizures. I hope this helps and you get your seizures under control

No abnormal EEG's just mean seizure activity in different areas of the brain. They may have nothing to do with tumors. I had seizure activity in more then 1 lobe of my brain. The EEG showed where in the brain the activity came from. The doctors had already looked at the MRI of teh1960's and said it was normal. By seeing where the seizure activity came from they went back and checked those areas closer and they found scared rain tissue which was caused by a hemmorage to the brain, That hemmorage was caused by a blow to my head. Additional testing for a procedure was done around 2004-5 and Doc said that blow was done between the age of 6-8. I did hit my head back then but the docs were more worried about the 4 teeth that were knocked out and the gask in my tongue and cheeck which took 32 stiches. Anything can cause seizure actifith. Like tissue that didn't grow right. All a seizure is is an electrical impulse going off wrong in the brain causing a chain reaction. Medications are created to keep those electrical impulses from causing the chain reaction from happening. Generally a focal seizure starts in one area of the brain. With me it starts in my right hand. Which means the seizure activity is in the left lobe of my brain. One side of the brain controls the other side of the body. A focal seizure can generalize. Meaning it covers the entire brain and by doing that they become convulsive, Those seizures can and do look like a grand mal seizure. The main difference is the person having it is concious and sees, hears and knows something is happening. When mine did I saw the fear in peoples faces. I heard them I knew who told people to get the nurse. I haven't had a convulsive seizure since 1970, But I still have focal seizures as well as partial and absence seizures from time to time. Yes you can live with focal epilepsy. Yes you can have a happy life. Yes medication helps. There are medications today that have been reducing the number of seizures I was having. The same medicatins have shortened the length of time in those seizures. It has also reduced the time to focus (get back to normal) The seizures I have now are seconds in length and the focus time is also in seconds. Before those seizures were lasting 2-5 minutes and the focus time was 15-45 minutes and there were also times I had to crash and sleep before getting back to normal. As Amy Jo postedyou need to learn about your seizures and read about triggers. There are triggers that can cause seizures in some people. Stress is one of them. Also lack of sleep. With me getting to hot to fast causese some of mine. I would also suggest yo uget the My Epilepsy Diary which can be found on this site. look under the Get Help section. Watch the video which tells yo uhow to use it . Give your neuro permission to bring it up he can look at the graphs and other information. By doing that he can come up with medications, dosages and procedures that can help control your seizures. I hope this helps and you get your seizures under control

Newly Diagnosed looking for support

Comments

No abnormal EEG's just mean

Submitted by just_joe on Fri, 2014-08-01 - 11:35

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