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Newly diagnosed and many questions

Sat, 03/11/2017 - 19:26
Hello everyone, I have a number of questions and a story to tell. First, I am 35 years old. I used to have fever convulsions all the time when I was a kid and they told me i'd outgrow it, and it appeared I did. My junior year of high school when I was 16, I had a grand mal...and they thought it was a freak thing, no big deal. So... about a month/month and a half ago... I was sitting at my desk at work, not stressed... no big deal (i'm an IT engineer for a living)... and all of a sudden I felt this huge wave come over me and I became INCREDIBLY nauseated. Had a friend drive me to the nearest express care... they checked my blood sugar, that was fine... diagnosed me with vertigo and sent me on my way. I literally had to stare at the floor to stop myself from vomiting. I wasn't buying the vertigo diagnosis, just didn't seem right. So I talked to my family doctor and described my prior history (my Mom is a diagnosed epileptic)... and they said they wanted to do an EEG just to rule it out. No problem. Well.... I got the EEG results this last Thursday. It showed "Left temporal epileptiform activity" and a mild response to the strobe stimulus. Turns out... my doc thinks what I was experiencing wasn't vertigo, but a seizure. So, they told me not to drive for 6 months, want me going on 25mg of topamax a day (smallest dose) and have referred me to the University of Michigan neurology department. So my questions are this - how accurate are EEG's? Is it possible there was some kind of mistake? My job requires me to drive to client sites, and obviously at this point... I can telecommute to some degree, but I clearly can't perform all the duties of my role without being able to drive. I'm worried and very concerned... this will financially ruin me :( Any help or suggestions here are appreciated.

Comments

EEGs can be misread but that

Submitted by Amy Jo on Sat, 2017-03-11 - 20:13
EEGs can be misread but that wouldn't be likely, treat this as the likely diagnosis. is there a way to get temporary accommodations for your work for medical issues, maybe call your local epilepsy foundation affiliate about what laws might apply? consider talking to the UM doc about a drug not likely to impact cognition.

generally with the EEG is

Submitted by just_joe on Sun, 2017-03-12 - 15:27
generally with the EEG is comes back normal because it is short. If it shows epileptiform  they know it is from the left temporal lobe. They also saw some response in the strobe light part of the EEG. Knowing what you posted near the beginning and the fact you had a grand mal they thought was a freak thing. Well those fever convulsions could have been seizures too. The neurology department at UM can find out more and prescribe medications that can control your seizures. The driving part is written within state laws and they will also know how to help with that. Generally going certain periods of time without a seizure can do it. Each states time period is different.

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