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Newly diagnosed

Sat, 05/20/2006 - 23:21
Hi All, I posted before, but can't seem to find my previous post, so I'm posting again. Sorry if it's a duplicate. I'm a 34 YOF, and I just had my 3rd tonic-clonic since September 2005. They have been spaced at 4 month intervals and have always occurred on the first day or two of my period. I have partials or auras around the time I ovulate every month, and have had for probably about two years. They were mis-diagnosed as panic attacks, so I've been on antidepressants since September.(funny, they haven't been working!) They thought my first seizure was actually me passing out from hyperventilation, as a result of a panic attack (which we now know were auras), never mind the fact that I kept telling them I wasn't hyperventilating. My neighbor was the only one who witnessed it, and she didn't think I was hyperventilating either. They kept telling me you can hyperventilate and not know it. Ok, maybe some people can. My second TC was in January, in my sleep one morning while I was alone in bed. My husband was already up with the kids, and only became aware something was wrong after I was banging on my bedroom door and wandering the house in a state of confusion. They chalked that one up to sleep-walking, even though I have never done that either. The last TC I had was last Saturday, and my husband and children witnessed it. We were getting ready to leave for the day, and my husband and oldest son came in from putting the dog out in the kennel and I was on the floor. The ER doc (who, incidentally, happened to be the same one each time...out of 18 that work our ER.)finally decided that maybe I was having seizures after all and referred me to a Neurololgist. He was pretty sure of a diagnoses right away. I had Reye's Syndrome as a child, and he suspects I have a scar on my brain from that. I had my MRI yesterday, and will go back to discuss the results next Friday. Meantime I am on Lamictal. This is so out of left field for me...Epilepsy was something only some of the "special Ed" kids had growing up. I realize that is a ridiculous sterotype, but that was the way it was in the 70's. I am so overwhelmed thinking about what this is going to mean for the rest of my life. I'm probably never going to have another day when I don't wonder if "today will I have a seizure?". It's such a strange concept for me, and I have to say I'm a little in denial about it all. I keep thinking it will all go away, like it's a bad dream, or a mistake. I'm sure that's pretty typical of anyone newly diagnosed with just about anything. Anyway, this is getting lenthy, so I'll stop. I also wondered if most of you wear medic-alert tags and if so, what info do you put on them? I'd really appreciate any feedback at all...either here or my personal email at lmevans926@aol.com. Thanks!

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