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new to this site
Sat, 03/11/2006 - 22:01Topic: New to Epilepsy.com
Hi! My husband has epilepsy, he has had it most of his life (he is 66) and handles it well with a great attitude, he has a seizure about once a month, usually early in the am but sometimes other times, it is always an adventure for me. The hardest thing is he never wants to talk about it and I am left wanting to vent or whatever. He is also diagnosed with diabetes and I think there is a connection but he doesn't want to explore that. He feels he is doing better than ever so he is Ok with his meds etc - the other challenge for me is his loss of memory, I can get short with him when he forgets names etc, also sometimes 2 days after a seizure is the hardest, he can be really needy, or sometimes doesn't sleep well and gets wired. He doesn't drive too and that can be a challenge. Anyway, we live a day at a time and are very blessed compared to a lot of people with this condition. He never lets it stop him from doing stuff, he works and is quite "normal" in many ways, I think it is the mood changes that is also the challenge for me - I don't know if it is an "after" seizure thing or just life. He has had spiritual experiences too which is quite a plus for him. It is an amazing illness - almost like living in a dream - but not easy for us to live with. Blessings to all, Sossie
Comments
Re: new to this site
Submitted by Jana33 on Sun, 2006-03-12 - 17:06
I'm fairly new to this site myself. i have been having seizures since 02/2004 but that doctor did nothing because my EEG came back normal. well in 04/2005 I started having seizure again and my new doctor said I was having seizure but i'm also a diabetic and he wanted to make sure my Diabetes wasn't the cause. Well it turn out that my diabetes was not the cause. well they did stop for a couple of month then xmas Eveof 2005 I had two seizure back to back so my doctor said no we need to see a seizure doctor. well from 01/13/2006 until 02/2006 I had 13 seizure. well The Doctor diagnosis me seizure disorder and he put me on Trileptal 300mg twice a day. It is not easy for my family or my friends they worry about all the time. the hardest part for me is I can't drive anymore. I feel like my freedom has been taken away because now I have to have my wife drive me every where. i have two daughters and they like to go out and do things but i cant take them if I have to drive them. Well I take it day by day and i put it in GOD hands.
Re: new to this site
Submitted by angel_lts on Sun, 2006-03-12 - 07:16
I know after I have at least a generalized seizure I am pretty down, tired, depressed, and tears can just flow easily. For I dont have many of those seizures for I usually have complex partials. And memory is getting bad, faces, names, titles of movie....my husband remembers things for me sometimes. But for the most part, I have a very good attitudue with this condition. I have had epilepsy for 36 years and have done just about everything with epilepsy. You have to have a good attitude to survive in life with epilepsy. take care Lisa http://health.groups.yahoo.com/group/EpilepsyApproach/