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New to site

Mon, 02/20/2006 - 13:13
Hi, I'm new to this site and I'm glad I found it. I can relate to many of the stories I've read so far. I've had epilepsy since I was almost 16. I'm now 43. It started with a grand mal seizure that I stopped breathing during. My father just happened to be in the next room and heard me gasping for air. He gave me CPR and brought me back. I've only had a few grand mals and those after I was kicked in the head by an ex-boyfriend....another story, which I won't go into detail about. I have temporal lobe seizures which I don't remember a lot of the time. Mostly, I rely on what people tell me I do. Sometimes, I just stare at people and can't speak, my hands shake, I sometimes lose bladder control (during those seizures I'm told I make offensive gestures...my doctor and I agree I'm trying to stop the flow of urine), sometimes I rock back and forth, or, my whole body shakes. They last anywhere from a few minutes to 5. Getting back to normal can take up to 20 minutes. Mine also happen around the time of my period and they haven't found anything that completely controls them. I've been on: phenobarbitol, dilantin, tegretol, depakote, depakene, lamictal and currently, carbatrol. I'm sure there's a few I've forgotten, too. My doctor wants to try Keppra, now. Is there anything anyone can tell me about that one? Thanks, in advance. I look forward to having somewhere I can go for support. Peggy

Comments

Re: New to site

Submitted by gizgen on Mon, 2006-02-20 - 13:57
hi peg im also new to this site i know i go spacy and i usually tell people just to let me alone and i talk myself out of it i get the funny feelings throughout my body im on Keppra and Depacote happens the same time as you cant take the phenobarb or dilanten i turn bright red from them had a few others i hoping my new dr can help me more cause finally going thru menopause so im not in complete control of them yet

Hi! I wish you good luck

Submitted by PeggyS on Mon, 2006-02-20 - 19:20
Hi! I wish you good luck with the new doctor. I hope you can get control of them. Keep me posted on what happens. I know how nervewracking it can be to find the right dose with the fewest side effects. Thanks, Peggy

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