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New To Room

Tue, 01/30/2007 - 10:35

Topic: New to Epilepsy.com

Hello Everyone, My nic is Dr Toots and I have been eppy for 35 years now. I have recently been offered right frontal lobe surgery and was wondering how many of you have had surgery and how it is going for you. Everyone I have chatted with seems to agree that they would do it again and that is encouraging. I was diagnosed about two years ago with Double Cortex Syndrome which is a birth defect and the epilepsy is a result of that. I am on three meds right now and wondering also how many meds are you on if you have had surgery and why this is necessary. Anyway, don't want to be to long winded so I will wait and see how many of you respond to this and hope for the best. Regards, Dr Toots

Comments

Re: New To Room

Submitted by rmoedas on Tue, 2012-10-02 - 15:04

Hello Join us on facebook group Double cortex syndrome / Doppia corteccia cerebrale. We are a group of parents and children with this disease. Rute Silva

Re: New To Room

Submitted by scratch on Tue, 2008-08-26 - 05:34

welcome to our room dr. toots..............alot of good info here .............take care and god bless......scratch

Re: New To Room

Submitted by colina on Tue, 2007-01-30 - 11:46

Hi there Dr Toots(realy like the name) Welcome to the community and it was very nice to meet you in chat last night. I'm personaly not a candidate for surgery so I can't realy help you there. I have however had epilepsy for most of my life and understand the trials of dealing with it. I'm currantly on 2 meds keppra and lamictal and so far it has been the best combination for me. The least side effects. There are many here who have had the surgery so keep reading around and dropping in to chat. At the very least it will help you feel so not alone. Smiles!

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