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this is new for me

Thu, 11/16/2006 - 23:58
This concept is new for me, so forgive me if i don't make much sense. My doctors have told me that i've had migraines since i was 16 and it was just hormonal, at 21 they said it was the stress of my major, at 24 they "thought it might be seizures." Now, a few months later they concluded i have simply partial seizures. Its nice that it finally has a name, but i don't know what to do with it. All of these symptoms that i've always had finally have an explanation. And while its easier to deal with now, its still there. My family and friends are ready for me to be better now. They know what's wrong with me, its not dangerous, i'm supposed to get better. I know what i have is not exactly life threatening, but is it really not that big a deal? Am i just supposed to be ok with this?

Comments

Re: this is new for me

Submitted by cath_y on Fri, 2006-11-17 - 07:42
Hi mortalgirl, What doctor did you see that told you that it was simply partial seizures? Was it a family doctor? If it was the next step you need to do is to find you a good Neurologist or an Epileptologist. They both work with people with epilepsy, but the Epileptologist is the greatest and they know everything, even more then the neurologist. Then once you do that they will probably do a couple normal test that we all have had called an "MRI" and a "EEG" to see if your doctor told you correctly, then they will start you on medication to see if they completely stop the seizures that you have, if so that is great. There are people out there that have seizures and all they had to do to get them under control was to find the right dose of the right medication to be seizure free and live a normal life. It took me many tries with many different medications and 2 surgeries before we got it right and now I am back to living a normal life. You say it isn't something that is dangerous, but if you are still having seizures, then it can be something dangerous depending where you are and what you are doing. I had a seizure before mine were diagnosed and drove probably 1000 feet or more of which 500 feet of it was down a railroad track missing a train by 2 minutes, so it can be dangerous. So I would say get to one of those specialist and see whay they say. Best of luck to you, Cathy

Re: Re: this is new for me

Submitted by mortalgrl on Fri, 2006-11-17 - 12:21
Hi Cathy, I know its odd, because I came here looking for people who understood what I meant, but I almost didn’t expect anyone to answer me. Thank you. It started with my family doctor. No one wanted to accept that it might me more than migraines until I started having memory lapses and losing track of time. They (doctors and family) finally decided that was unusual for a 24 yr old, even one with migraines. My neurologist started with a MRI, now 8 months 2 EEGs and 2- 24 hr EEGs later he diagnosed me with epilepsy. In the past 2 yrs, between my I’ve gone through 4 migraine medication and I’m on my 2nd seizure med. At least 2 of the 6 have cause serious depression, which the neurologist tells me is practically impossible. When I say it isn’t dangerous, I mean I know that it could be so much worse. They say I only have simple partial epilepsy, and to be honest I feel guilty talking about it at all since it seems insignificant compared to others I have read about. The seizures seem to be under control at the moment, it’s the other symptoms. Maybe that’s still the seizures, I don’t know. I just don’t remember things, or get disoriented/dizzy, migraines and pain still won’t go away. Its not even so much dealing with the symptoms, I could figure out how to do that. Its people telling me I need to not act the way I do when they know there is a reason for it. I don’t mean to complain about something that I simply need to deal with. But I don’t know how to respond to my family and friends acting like I need to hold their hand and tell them I’m going to be ok when I’m scared to death. And again, thank you for listening

Re: Re: Re: this is new for me

Submitted by meeciamecia on Fri, 2006-12-08 - 22:28
meeciamecia, Hi Cathy, how r u today? I know that you probably are very much nerveous about this whole situation. But I will tell you this much it will calm down after awhile, but keep that there might be a couple of bumps along the road. And that is just the way it is, 'cause till this day I do still hit some of the bumps in the road. Some of them are really bad to me. You know going back to the doctor for your check up's etc..I am still getting used to my medications 'cause sometimes I have to have an increase in the dosage or decrease the list goes on. But right now ever so often my neurologist will ask me if I changed my mind about haveing brain surgery. But I keep tell him NO!! I have even had it were I had to recieve 5 staples in my head yeah that's right I said 5 staples. But basically all I am trying to say is hang in there with us all!! But I must go & I will return again.GOOD Luck Cathy. And hope to hear from you again. kecia Oh nothing you say is insignificant ever!! rememmber that alway's

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