New here

I’m 51 and was recently diagnosed with seizures. I guess I’m better off then most, because my seizures just consist of phantom smells. The awful part about it tho is that the smell is of car exhaust and it’s just awful. The interesting thing about my seizures is that they pretty much are constant. It’s not for a couple of seconds/minutes or what ever. It’s all day long . My doctor put me on trileptal and wanted me to build up to 450 mg twice a day. The seizures stopped at 300 and when I was doing 450, I felt totally exhausted, not sleepy, but not being able to do much of anything. So he let me do just the 300. The only problem with that is that they started coming back, so he said to try doing 450 just at night and that worked for a week or so and then they came back with a vengeance. So I started taking 450 in the morning too. So far it hasn’t done a thing and I am, once again, living with Vicks under my nose. I’m curious if anyone else here has these types of seizures or know of anyone that does.