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new here
Wed, 06/28/2006 - 19:33Topic: New to Epilepsy.com
hi my name jess my son is 5 he has complex partial seizures hes on deprokote sprinkles.hes had no seizures in 9 months.hes been doing great at school.well blood levels low uped meds since then hes weir.hes clumsy and hes sleeping is horrible.hes up half the night up early morning and very aggressive cranky.hes having hard time separting scared be in his room wants sleep on the couch.its been hard he goes back doctor july 20th hopefully we can get some help
Comments
Re: Re: new here
Submitted by dallastroymom on Mon, 2006-07-03 - 18:30
jess not sure hes very aggressive moody and off on minute relaxed calm next.hes only ever had complex partial seizures at night he doesnt even awake for them./he is going back too doctors in july hopefully they can help him .its very hard on me at times
Re: Re: Re: new here
Submitted by ekoorb on Tue, 2006-07-04 - 20:38
I know it has to be very hard to see your child's behavior change as a result of the meds he is on. Have you told the docs? It seems if his reactions are really strong to the meds, maybe the docs should consider something else. My daughter's is on Topomax. She does the sprinkle tablets-- just one at night (15mg). We were supposed to switch to a double dose after two weeks but we switched docs before her being on the meds two weeks and the new docs said we did not have to up the dose. I think a second dose would have been tough on her. How do you know your child is having the seizures at night? My child would sit up and cough as if she was going to throw up. Now she seems to have adjusted good to the meds.
Re: new here
Submitted by ekoorb on Wed, 2006-06-28 - 20:38
That is great that your son has not had a seizure in 9 months. My daugther, also 5, was diagnosed with Benign Occipital Childhood Epi. You mentioned he is having sleep issues. Are the sleep problems related to his seizures? Are his seizures during sleep or daytime? My daughter's only have occurred during sleep.. She is on a real small dose of Topomax which she started in March and she seems to be adjusted to it. Do you think his crankiness is attributed to the meds or the sleep issues?