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New to the forum and epilepsy. Have a question.

Fri, 06/19/2015 - 12:23

 

Hello Everyone,

I'm new here and to epilepsy, I hope that I am posting this in the correct place. My son was diagnosed with seizures, which we had suspected to be migraines, in March of this year after experiencing his first grand-mal. The neurologist said that the kind he has is hereditary, which got my and my husbands brains wondering. We are curious if I have been having partial seizures. My latest one was last night, so I will explain exactly what happened. My husband and I were playing a Wii game in the dark and in the game you have to watch closely and choose which of the little things the object was put under, similar to the egg and bean game played at carnivals etc. Well I started feeling kind of funny and a little nauseated. I chalked it up to the movement I had watched so closely but a few minutes later I knew something was seriously going on. It's a little embarrassing but I have pretty severe emetophobia (fear of vomiting), so I'm unsure if what happened next was a panic attack because I was feeling unwell or a seizure. Suddenly my arms started curling in and even my fingers were contorted in strange ways. I was rolling my back and my voice sounded strained. My husband, thinking it was a panic attack, was trying to calm me down but he said he could feel the sweat through my shirt. What is strange is for the most part I was pretty calm. I wasn't crying or hyperventilating or anything. I continued to move in strange ways and then it began to taper off after about seven minutes. I was conscious and talking to my husband the entire time and was even able to google for myself the symptoms of a mild seizure. This isn't the first, second, or even third time this has happened. I've experienced this about twenty to thirty times in the last three years assuming they were panic attacks. I know you all can't diagnose me and I've made an appointment with a doctor but in your opinion does this sound like a seizure? I want to remind you that I was completely calm during this episode so I am sceptical that this was a normal panic attack.

One last thing: today my arms and back are so sore from how tight my muscles were.

 

 

Comments

What you posted could be

Submitted by Anonymous on Fri, 2015-06-19 - 17:31
What you posted could be seizures. When I was having focal motor seizures that generalized I knew what was happening and saw, heard and knew what was happening. I just couldn't say anything. A year earlier I thought the wierd feeling in my hand or they would have twitches going on for a long period of time and I talked to my brother during them. Those twitches were focal seizures that start in my hand. Today they would be simple partial seizures. So yes you can talk or some people can talk and do things while they are having a seizure or the seizure is over and they are needing time for things to settle down and get back to normal. I had seizures while in a call center and I still worked with the customer and resolved their issues. It did take time because it took time for me to use my right hand correctly.A person can start to sweat and their heart rate will increase at times. I know mine did at times.Doctors can help but in your case it needs to be a neurologist like your son is seeing. If you are happy with that doctor then by all means see if you can get an appt with him. I hope this helps and you get the assistance you need Joe

I'm still new to this all as

Submitted by AMPetti on Sat, 2015-06-20 - 04:32
I'm still new to this all as well and am still learning. My seizures haven't been fully diagnosed yet but have been labeled as resembling complex partial seizures (my right hand will start to twitch, move into my head, and then the rest of me starts twitching) so it was explained to me (my auras I don't lose consciousness for, so I'll feel a weird pain in my head and a cloud feeling, have no idea where I'm at or even what day it is, then my right hand twitches.) it has been explained to me that when my twitching transfers to my whole body I lose full consciousness. I was put on keppra after my second ambulance trip to the hospital and it's helped me greatly. So far I've had to have two increases in dosage, the first increase was two weeks after I initially started keppra and the second was very recent a little over a month of my last increase. Now, before my increases in keppra I would have breakthrough seizures. I don't feel my aura anymore since starting the keppra but I'll still feel the pain in my head, starts in one side then moves and my right hand will start twitching and then move into the rest of my body. Since being on the keppra I don't lose consciousness anymore so I can feel everything going on but I lose my speech and even lose feeling in my legs and can't walk. I would definitely go to your neurologist if you like the one your son sees. Definitely sounds like seizures to me also, even though I'm still new to it all myself

Amber If you take meds 2

Submitted by Anonymous on Sat, 2015-06-20 - 18:19
Amber If you take meds 2 times a day try and make sure those 2 times are 12 hours apart. I take mine at 7 am & pm. Before I was doing it I took them at 6am and when I went to sleep around 10pm. The difference was way to large a difference in time that break thru seizures were happening. prescribing meds and telling you to take them 2 times a day means the 2 times needs to be 12 hours apart. If taken at 7 am and 10 pm the 3 hour difference would mean your theraputic levels are lower at times of say. If you get your meds taken right you will have fewer breakthru seizures. I knnow been there done that and Doc varified it with me.

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