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new to epilepsy.com

Tue, 04/26/2016 - 20:27
Hello all! I am a 28 year old, I had my first seizure when I was 3 weeks old, until I was almost 11 years old I was having the grand mal and pedi mal seizures. they had tried numerous medications none seemed to work completely. When I was almost 11 years old I had my last grand mal seizure ever. I seemed to be doing fine then when I was nearly 17 I started having "episodes" which my mom believed to be pedi mal seizures, they did an EEG which showed I was having simple partial seizures. They then tried medications from Keppra to Dilantin to topamax and trileptol only thing is no medication worked more than 75% so I continued to have episodes. Eventually they had believed the seizures to have gone away they did a 90 minute EEG a couple years later which they said didn't show I was having any seizure activity. When I was almost 20 i developed a panic disorder they believed could have possibly came from all my past seizure activity and they put me on Xanax. 8 1/2 years later and I am battling a severe panic disorder always was nervous to try an anti depressant for my anxiety due to the fact it lowers the seizure thresh hold, I am for almost a year now having episodes once again that seem similar to the ones I had that they linked to simple partial seizures. I started this uncontrollable blinking thing where as I am blinking it's very rapid and I cannot stop it and I hear a loud vibration in my ears while the blinking occurs, I am suffering from massive vertigo, I am feeling zoned out some times I zone out so much I forget to blink then feel a sensation of falling, i feel out of touch with reality and light headed to the point of nearly fainting. The zoning out lasts all day long but is worse some times for a few seconds to minutes. My hearing also randomly sounds like I am under water. The doctors believe I may be having seizures I got referred to an Epileptologist and had an EEG done 3 weeks ago where I wore it for 72 hours, he wanted me to do the video one but with my anxiety I didn't feel safe being in the hospital for two straight days (hospitals trigger more panic in me..) but now he's requesting me to try to video on my phone some of these blinking episodes to bring in next week when I go for a follow up so he can actually see them happening.. My question is has anyone else experienced severed anxiety from epilepsy or during episodes? Or any of the other symptoms I am having? I am anxious if this is seizures again, my mom isn't even sure now if the seizures ever actually went away since for years this has been an off and on thing.. Just looking for advice

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