New to the board > long intro

Greetings everyone.. I just happen to come across this forum when looking for something else, funny how that happens isn't it? ;) Anyway. My name is Sue and it's a pleasure to be a part of a group. I'm epileptic and have been since I was an infant (2 or 3 yrs of age, that I can recall) It's a long story as to how it all came about but I'll save the dramatics and by saying I was born in 1968 and back then when the FDA decided to test their idea of a three level DTP shot, well lets just say I got the blunt end of a high fever every time I received it and it caused a scar on the left temp lobe - hence the CP seizures for 27 yrs. Went through every type of medication on the market, tons of different doctors; recall my Mom screaming at the top of her lungs more than I can count, "my daughter is not faking it and she really is sick" I can remember her hauling me out of a few offices and slamming doors in their faces a few times too - guess that's where I get my temper from; they say it runs deep with Italian heritage. *grin* Anyway. I caught up with 2 excellent doctors, they determined the best option for me was to go the route of surgery because there was no other choice. So I connected with a neurosurgeon at Univ of MD (this all took place in 1995 mind you) I was one of the first patients involved with a case study of the laser surgery; pretty cool I thought. Let's see, I was seizure free the first year then they came back for about 2 yrs (that was expected - the doc said it was no guarantee they would totally disappear but it looks pretty positive so I just went with the flow) I moved to the midwest, met a wonderful man, got married, etc. :) I'm still in touch with the neuro on the east coast, but have a doc out here now. Funny thing about the brain when it gets worked on; it takes a long time for it to heal first of all. Second thing, it goes through a lot of trauma - I mean A LOT of trauma. We discovered that the reason the seizures came back were not because the surgery didn't work, it actually did work. What was going on was normal; the brain was actually "rewiring itself". What was happening to me was misfires. Whenever a seizure would occur it would fire between and cause the spike to the temporal lobe, causing a seizure because that was the part that was damaged. Well now that the piece wasn't there anymore, where was it to go? No where, it was free flowing. Basically it's kind of like throwing a baseball into space; it keeps traveling and never stops until it bumps into something eventually (or not). Well, that's what was going on in my head, literally and that is what was causing all the havoc. I had all the brain spikes in different directions bumping into one another and they caused the problems. As they bumped into each other, it was like an automatic teaching signal going off. Look at it this way; if you're walking down the hall way in the dark at night going to the bathroom and you bump into the wall you know that you have to turn right? The same goes for the brain wave. :) Sorry for the long explination but that's the only way I could think of saying it. Needless to say, I've been so involved with the medical end of things; I feel like a medical book. Anyway, I was able to get placed on the right mix of medication (low dose) that seemed to do the trick. I've been seizure free for 6 yrs now which is a major accomplishment. There's been a few things happening the past month that I'm not too sure about, which brings me here to find some possible answers to or others that may have experienced similar situations. Please forgive me for rambling about myself. I'm looking forward to chatting with you all. Regards, Sue