The Neurologists have no reasoning now for my seizures.

I am 23 years old, almost 24. I have an almost 14 month old daughter. After I had her (two days after) I started feeling like my head was swelling and had issues with ringing and hearing when it happened. The nurse just told me that it was probably stress, so I ignored it. It has happened since, and I am not sure if it has anything to do with my situation. On Halloween I got up at 5:30am after 4 hours of sleep, and went to work. We started unloading truck at 6:30 and at 7 I had my first seizure. I didn't have any aura's, I was completely unconscious and cracked my head open. They said they did not initially see me fall, but thought I had just fallen at first glance, until they saw my teeth gritting and my limbs jerking. Five minutes before this happened I was drinking soda (I know sugar and caffeine can be a trigger) and I had a hot flash. They say I turned blue, but thankfully when they turned me on my side and put paper towels under my head I had color returning to my face.

So I get rushed to the ER, they were not as concerned about the MRI, etc until I had a second seizure, which my Dad said I made a groaning sound, my arms raised, and I starting seizing.  So I had an MRI, EEG, and a Cat Scan. They found a cyst (still don't know the size) on the right side of my frontal lobe. The neurologist and physician at the ER said they believed that the cyst was pressing against the brain, which caused the seizures. So I was prescribed Keppra 500mg twice a day.

I just went for my appointment yesterday, which was 16 days since my incident. I had an appointment with the Neurologist's Nurse Practitioner. I brought in a list of my questions along with my symptoms since I have started the Keppra. Well first off, they now do not believe that the cyst caused the seizures, because the EEG showed seizure like activity on both sides of my brain. So I asked if the cyst was considered operable or shrinkable, and he said they are not concerned with that at the moment due to the fact they do not believe it is the cause of my seizures. They also are not sure whether I developed this cyst while I was a child or from head trauma (I used to hit my head when I was angry as a teenager and I completely understand they can not say what the cause of the cyst is).

He wanted to switch me to gabapentin due to the aggression that Keppra has caused but discussed the risk of seizures by switching medications, so I am going to try and just stay on Keppra. However I have had kidney issues in the past, which what also worries me.

They have ordered an MRI in 2 months to see if the cyst is growing, I am going to have a heart monitor for 30 days, and a blood panel of my hormones. So, I guess I am reaching out to see if anyone has been in a similar situation or if anyone has some sort of answers or guidance.

Thank you,

Ali