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Mom to newly diagnosed 18yo

Mon, 09/25/2017 - 20:10
My daughter was diagnosed today with "localized seizure disorder." She had 3 seizures on 9/6 and all 3 were, from what descriptions I've read, tonic clonic. However when I looks up "localized SD" the symptoms described don't seem to mention what she experienced. The neuro said (after the 3 day test) that she had right sided, temporal lobe, activity, and he has put her on 100mg Vimpat twice a day. Now let me mention a couple things, first my daughter just turned 18 on 8/31, secondly she has been in Maryland (I'm in TN) visiting her Father, but is coming back once she's gotten started on the meds. The situation in MD was not a good one, and caused her an immense amount of stress. I'm just trying to narrow down what we're actually dealing with, as both she and I have questions about things like work, school and driving. If anyone can help, it would be greatly appreciated! Thanks

Comments

seizures in a part of the

Submitted by Amy Jo on Tue, 2017-09-26 - 03:03
seizures in a part of the brain are localized, commonly called focal or partial depending on when one learned the lingo as it has changed. a focal seizure can spread to the entire brain and become a tonic clonic. one chooses medication based on types of seizures a person has although some medications treat many kinds of seizures or work for different syndromes. she’ll need a neurologist to continue treating her if she’s moving. a number of answers might not be apparent until after a while. a lot can depend on if her seizures are controlled. many people take medications and don’t spend a lot of time thinking about seizures as they are controlled. other people are never seizure free long enough to drive. state laws differ, you can look up some laws on this site. 

"localized seizure disorder"

Submitted by just_joe on Wed, 2017-09-27 - 16:25
"localized seizure disorder" Well the way I heard it and learned it was a long time ago. Focal Motor Epilepsy. That was only a part of my diagnosis. Focal motor seizures START in one part of the brain. For me it starts in the left lobe that controls my right hand. Every seizure I have had for the last 30 years start with my right hand feeling weird or numb. Now focal seizures can generalize and when they do they move from one area to the entire brain. Almost all of the convulsive seizures I have had started with my right hand. the weird feeling then my hand would start rise and once shoulder high I was down and convulsing. In those seizures I do not lose consciousness. Seizure medications are created to stop certain types of seizures. But once approved they are then tested to find out all the other types of seizures. They are tested to see which medications they work with for all kinds of seizures. As Amy Jo posted do get a neurologist and work with them to help get her seizures under control.What can you expect. well she is no different then the girl next door. I finished high school with a B average even tho I failed all but one class my senior year. Hey if all you need is one course and you pass it why worry about the others. Especially when I was working a 40 hr week.. Work?? Well I have worked in many different fields and was a part owner of a small business. Many people with epilepsy drive, Each state has a law about driving and seizures. They are written to protect the people. They can hinder some people but what would happen if a person had a seizure while driving. As for driving. I've never driven because I still have a seizure that lasts a few seconds now and then. But then I have been getting to and from places I need to get to for 50+ years.

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