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Looking 4 answers about nephew.
Fri, 06/16/2006 - 20:07Topic: New to Epilepsy.com
My little baby nephew has been diagnosed with West syndrome, Infantile spasms. Need help in understanding what this is. He is only 4 months old. Prognosis is grim. Desperate for knowledge and answers. Any help would be great. Thank you
Comments
Re: Re: Looking 4 answers about nephew.
Submitted by spiz on Sun, 2006-06-18 - 22:50
Aunt Steph,
My heart goes out to your nephew and family. I am so glad you have come searching for answers and knowledge. Understanding the diagnosis will help you and the parents feel a little less at a loss when talking to doctors. Here are a few links regarding West's syndrome that may help. I wish you all the best!
http://professionals.epilepsy.com/page/syndromes_spasms.html
http://professionals.epilepsy.com/page/syndromes.html
http://www.emedicine.com/neuro/topic171.htm
-Spiz
Re: Re: Looking 4 answers about nephew.
Submitted by Aunt_Steph on Fri, 2006-06-23 - 21:55
Thanks Lisa. I will.
Re: Looking 4 answers about nephew.
Submitted by angel_lts on Sun, 2006-06-18 - 21:55
Aunt Steph Sorry to hear about your nephew. It can be a scary thing to see that happening to the babies. Look into(pyrodoxine)b6. This can help when babies are having seizures. They could be deficient in b6. talk with your doctor Check out this site www.ninds.nih.gov/disorders/infantilespasms/infantilespasms.htm http://www.epilepsy.com/stories/ps_1064252409.html take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/