Just got here =)

Hello Corazon! Welcome to the site! You'll find lots of information here, and many lovely people who can help. I'm sorry your daughter have such a hard time. As a parent you so wish to make their life easy and happy. And sometimes things are just out of your hands. My five-year old son was diagnosed 5 weeks ago. With Juvenile Myoclonic Epilepsy. Not one of the worst, but he won't outgrow it. They say it's genetic, but we have no family history. So there was no one that we could turned to for information, then I found this site. It's helped me tremendously with dealing with the diagnoses and helping my son. It's still difficult. Like you say, parenting is hard. And when you have a child with special needs, it makes it so much harder and more heartbreaking. But you're right, there is nothing more rewarding. No bigger love. Take care, and I hope you find all the help and info you need. Essie (mom to Nian(5) and Meonie(3))

Hi & Welcome, While I don't have kids, I'm an adult who is epileptic and grew up with some other issues along the way. Today, I'm now university educated in sociology/criminology and I work in Information Technology (inside sales support - Microsoft/Epicor). First off, my parents worried lots apparently because I didn't talk until I was 3. I guess apparently Chris, my older brother needed to shut up, because once he did I skipped baby talk and went to full sentences. Next, came my diagnosis - round 1 at age 5. The best thing my parents did was probably to treat me the same as my older bro. - you would've never known I had epilepsy at all. Next in life, the writing specialists, no connection to E, but I used to write all scrambled on pages until I saw a writing specialist for 2 years (gr 4-6) to correct that. Next came diagnosis round 2 - age 16 (age 12-16 I was seizure free & off meds a virus triggered the come back to date no one knows why). Toughest part probably - I went through a 'screw this' phase around 19-22, but I still graduated university. I've been on all kinds of meds in my life at times done the right things, at times the wrong, but I think my parents giving me the flexibility to be a typical kid and adult has been the best they can do. No matter what, don't let seizures consume your kid's life. They can be a sports kid, a dance kid, drama queen....anything they want to be. It may take a different path to fulfil their dreams, but never get in the way of them taking on this world to do it. All the best. Seizures have a way of coming under control. For me, it took learning the triggers (i.e. routines, stress, etc.) as much as meds. Good Luck Erin