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Jeavon's - Always photosensitive?
Thu, 10/13/2016 - 12:38Topic: New to Epilepsy.com
My 18-year-old son has had epilepsy for 6 years. His neurologist is adamant that he has Jeavon's. Everything I have read says that 100% of Jeavon's patients are photosensitive. He has never had an issue with flashing lights, even while doing an EEG. So, I'm wondering if anyone else has been diagnosed with Jeavon's and is not photosensitive. The doctor is basing his opinion off of the fact that my son has eyelid myoclonia (his are without absences), which is a hallmark of this syndrome. He does have grand mals from time to time, but they are usually triggered by sleep deprivation or getting out of his normal sleep routine. Otherwise, the grand mal's are very will controlled with Lamictal and Clonazapam, although Lamictal has caused some issues with logic and reasoning.
WelcomeIs this doctor the one
Submitted by just_joe on Thu, 2016-10-13 - 17:21
WelcomeIs this doctor the one he had 6 years ago? What was the diagnosis back then? So according to you he has never had an issue with flashing lights, even while doing the EEG.. Have you read the EEG yourself? What was written on the EEG? Yes many people can be photosensative without knowing it. But the EEG will show it. Jeavons SyndromeELMA This term is preferable to the term Eyelid myoclonia with absences because absence seizures without eyelid myoclonia are induced in some cases during hyperventilation and intermittent photic stimulation (IPS) with eyes open.In 1977 Jeavons first described ELMA as a separate form of photosensitive epilepsy (Jeavons 1977). Since then there have been a considerable number of papers confirming the existence of this unique syndrome.I hope this helps Joe