Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Isolated Seizure help and advice please

Fri, 02/13/2015 - 08:20

Hi All,

My name's Alex - I had my first ever isolated seizure back in early November 2014 and it scared the hell out of me! 

My job can be quite stressful at times and it was during an extremely stressful and tense meeting when I had the seizure - basically carrying out a disciplinary of one of our employees. In the week prior I had been on-site with a client and had worked 19 hour days doing a deployment (I work in IT btw!). 

One minute I was talking to this guy - the next I woke up on the floor covered in blood with an extremely painful nose and headache (I smashed my nose on the table when going down). Thankfully a few of my colleagues were also in the meeting and are first aid trained and knew exactly what was going on so I was in good hands.

A few weeks later I filled in the DVLA medical form and let them revoke my license as i'd read they would and had my first apt with the neurologist. One thing to mention is that whilst I've never had a seizure or anything in the past, I do suffer from some kind of speech impediment which i'm certain is anxeity related. If I feel in a difficult situation sometimes my speech will 'slip' - if that makes sense?! The neurologist didn't seem bothered nor think the two were related in anyway.

Fast forward over 3 months later and i'm no closer to a diagnosis and the NHS have been less than helpful. MRI came back normal which was good. The EEG results though have taken over 10 weeks to come through! I got them over the phone but the letter will be with me in a few days. Basically the lady said that the EEG came back OK but there were a few abnormal spikes - she said based on that 'We're not planning to see you again' and advised me to see my GP if I had questions.

Well as you can imagine I have lots of questions! What was it? What caused it? What are the abnormal spikes and should I be worried?

The main question though is when can I drive again?? As this is the biggest thing for me - I love driving and riding my motorcycle and I feel like my independence has been taken away from me. I've read and re-read every DVLA guidline imaginable and from what I can ascertain is it's 6 months off if EEG and MRI normal and there is nothing to suggest a 20% or greater chance of reoccurance. So the question is - am I under that magical 20%? and how can I find out?

I'm off to see the GP next week so hopefully he'll have some of the answers - it's just incredibly frustrating having to Google for answers and feeling shut out by the NHS.

I'm sure there is a wealth of advice to be had on here of people in similar situations so anything you can give is helpful please.

Thanks in advance,

Alex

Comments

The main question I have is

Submitted by just_joe on Fri, 2015-02-13 - 17:15
The main question I have is when can I drive again??  Here in the states it would depend on your states requirements. But in most the time period is generally 6 months without a seizure.I love driving and riding my motorcycle and feel like my independence has been taken away from me.   MRI came back normal which was good the EEG came back OK but there were a few abnormal spikes it's just incredibly frustrating having to Google for answers and feeling shut out by the NHS. I hope this helps and you get the asistance you needJoe

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.