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How Has Epilepsy Affected Your Life?
Sat, 03/11/2006 - 23:48Topic: New to Epilepsy.com
I would like to know how epilepsy has affected other epilepsy members life.
Comments
Re: Re: How Has Epilepsy Affected Your Life?
Submitted by ivy on Sat, 2006-03-18 - 12:19
In beginning, was very difficult. I didn't know what I had until I was 13 years old! Had had szs. all my life, mother noticed them when I was 3 mos.Family was in AF and every 6 mos. (we were overseas) mother and i would go see a neurologist in a cargo plane. she was sleeping and i read my records...voila,found out...would have grand mal szs. in school and not know what they were, how to deal with them or the kids around me. pardon my french..HELL. mother said the mds. told her not to tell me so she never did. no one ever told me about my szs. guess its a good thing i was curious and liked to read. both parents have passed away now.
Re: How Has Epilepsy Affected Your Life?
Submitted by Jana33 on Sun, 2006-03-12 - 16:44
Well I was just diagnosis this month. But all my doctor have told me I can't drive anymore until I get could controll. It is very hard for me to stay out of a car I like to get in a car and go where I want to go. I cried and I'm very upset because I have to wait until my wife can drive me every where. I feel part of my life been taken and I have to depend on people. I feel I can't be a good mom or wife. well I guess I will have to take it day by day.
Re: How Has Epilepsy Affected Your Life?
Submitted by angel_lts on Sun, 2006-03-12 - 07:27
For 36 years I have had this condition. But I managed to have my four children during this time. But it was not easy. I live in an rural area so there was no transportation for me. I could not get out, go to work, drive my kids to a restaurant, stores...We did things like arts and crafts, picnics around our home, walks...to keep them busy. Things got rough when the kids were starting school and I was just stuck in my home and I was bored to death. I had gone through brain surgeries, all the meds, ketogenic diet.... I have tried everything, still not seizure free. Finally just a year ago, I had found my niche and a new chapter in my life. I started my own cookie business in my home, in order to keep busy. ANd now going to classes for cake decorating. Got my cookies in a grocery store and will do cakes in the near future. Please read my story in my group. In files under personal stories. take care Lisa http://health.groups.yahoo.com/group/EpilepsyApproach/