Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi! New to forum
Sat, 09/23/2006 - 17:02Topic: New to Epilepsy.com
Hi there,
Can't wait to get to know others here and share your stories.
I suffer from grand mal's and have my whole life. Mine however are a little different from traditionals. I get frequent seizures a day, where I know no danger. I fall a lot and can even sometimes remember them. I pretty much get huge rushes of energy that can make me very hard to control and so, I need frequent restraint. I am currently doctored ordered into a harness that has locking buckles that I can't undo, insuring my safety. I am ordered to wear it at all times during the day. I have handicaps from it too. I also wear a helmet full time. Right now no medication has worked, just success with my restraint system.
I’m from Colorado btw, just wondering if anyone else is?
Thanks.
Comments
Re: I can't say I am from
Submitted by quick2judge on Wed, 2006-09-27 - 07:24
I’ve never been a candidate for surgery, if I had, I would have began my life both restraint and seizure free long ago. The only option I have left on the subject, is mixing meds, some thing my doctors going to experiment with in a few months. I hope it works, cause I would really like to go college but I can’t, both with my seizures and the equipmnt handicaps that I have.
The odd thing is, since being on this ssite, I’ve meet a lot of really great people and seen comparisons to their seizures in others but I haven’t run across anyone that shares the same sz’s that I have or uses simular restraint equipment. It would be nice to find someone in similar situation that I could maybe talk to about how their dealing with it.
I can't say I am from
Submitted by michelhead on Mon, 2006-09-25 - 14:59
I can't say I am from Colorado, I am from Ohio. However, I believe there is a thread under Living with Epilepsy-Adult Issues where everyone told where they were from. Also, I hope you find some relief with your seizures. Have you looked into having any of the different types of surgeries or do your seizures start from too many areas in the brain? This may allow you to live a less restrained life.