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Hi, I'm new
Tue, 10/17/2006 - 21:26Topic: New to Epilepsy.com
Hi, I am Nichole, I am 18(19 in dec) and have had E since I was 16. I am on 1200mg of tegretol. I have had both gran mal, and petit mal, and I have my spaced out moments too.my sister has it too (15) we actually both had our first sz. in the same month. My uncle had it so we assume it's hereditary. I have a question, how do you deal with the anxiety? I feel like I'm always afraid i'll have one. does anyone else freak out if someone says your name and touches your shoulder? small things like that scare me, because thats what happens after a sz. I hope to get to know you guys,
nichole
Comments
Hi, my name is Brielle, I'm
Submitted by BDawn on Wed, 2006-10-18 - 01:11
Hi, my name is Brielle, I'm 19, and I'm new to epilepsy.com. I have juvenile myoclonic epilepsy and was diagnosed in 2001.
I don't have the anxiety thing, but I have a hard time handling the college thing. I'm supposed to get 9 hours of sleep every night and that just can't happen. I know I should "get my priorities straight" but I don't want my epilepsy to control my life.
I have also just found out that I have a form of progressive myoclonic epilepsy. It won't cause the brain damage and learning difficulties, but my seizures just continue to get worse. I started with just the small, twith-like seizures and now I have both those and grand mals.
My seizures are very well-controlled, but we just found out that my little sister has epilepsy too and I don't want her to have to go through what I have.
I'm currently doing a research paper on epilepsy so if anyone has any info for me, that would be great
-B
Re: Hi, my name is Brielle, I'm
Submitted by equine_luver on Mon, 2006-10-23 - 17:24
BDawn, I know how you feel, I couldn't really go to college because of it. I wasn't planning on going anyway , but even if I wanted to I couldn't.
Re: Hi, I'm new
Submitted by Bedge on Wed, 2006-10-18 - 00:31
Hey Nichole, Welcome to epilespy.com - im kinda new to. I have complex partial sezuires, and I don't deal with the anxiety well at all. I aviod as many situations as possible, and i am really happy to spend my whole day at home in attempt to keep myself 'safe'. Although I do tend to think this is because I have spent 7 years of my life undiagnosed. It's hard to not have anxieties, when this thing happens to you and you have hardly any control over it. I think it pulls down your self confidence and faith in yourself. I am a big people watcher, and I find myself watching and wondering 'when can i do that (e.g. going to the shops, seeing friends etc) with out freaking out or worrying.'. I tend to think that 'normal' people take thier stability or general wellbeing for granted! haha. I guess its a seconady thing that has to be delt with. But it can only be delt with once your primary condition is under control. xxxxx