Hi, I'm Diana.

hi everyone, 

I figured I'd tell a little bit about myself and open up to advice or comments. My name is Diana and I'm 24 years old. I had my first ever seizure in March, 2014. Although my neurologist has done multiple MRIs and EEGs, no explanation has been found.

The night before my first seizure I skipped dinner because I had a late lunch. My husband and I spent the night with my brother and sister-in-law drinking and celebrating a birthday. We got home late that evening and I got sick almost immediately. I had 3 or 4 beers and a shot of liquor. We went to bed and I went to work the next day feeling pretty crummy, I made through almost my whole shift, I was about to leave about 3:30pm when I felt the "aura" and fell to the ground. The next thing I remember is being in an ambulance and being told I had suffered a seizure. 

Now, I'm sure everyone knows how it goes when you're rushed to the emergency room and the doctors do all of the CAT scans and stuff, well, on the way to my CAT scan, I suffered from a second seizure. The doctors at this hospital insisted I start 2000mg of keppra per day, so I did. 

Over the next couple of months my doctor lowered my dosage of keppra to 1000mg per day, which made me happy because it made me feel awful. We did more MRIs and EEGs, but still not explanation. Eventually I went a whole year without another seizure, I cut back my drinking, but I didn't stop completely, but I was starting to think I was ok! Maybe it was a one time thing, that all the circumstances came together for total disaster, at least that's what my doctor thought!

So, after a year of no seizures, my doctor agreed to ween me off the Keppra. I've been off of it for 5 months now and everything was going great. I was finally starting to feel like myself again, my headaches were less and less, the little voice in the back of my head telling me "what if you have a seizure while you're driving!?" got quieter. And then Monday night happened, I was awoken in the middle of the night by an aura, and I woke up at 6am on the floor. I had a huge knot on my forehead, a purple lip, and blood on my face.

This night I had also had 4 beers and ate dinner very early. It seems to be a pattern for me, but my nuerologist doesn't seem to think it's significant. 

I am so unbelievably frustrated that this happened again. I'm so sad, and angry! I thought I was normal again, I was starting to feel okay! My nuerologist started me on Lamotrigine (Lamictal) and so far I feel okay. But I'm so so so so bummed.

I am open to any advice or comments you may have, anything to help ease the disappointment. Thanks!