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Hi, I am new here....
Wed, 08/02/2006 - 01:38Topic: New to Epilepsy.com
Hi,my name is Bobbie and I just found this site .My husband and i have two children together a son who just turned 8 years old and a daughter who is 9 years old . we found out our daughter has rolandic epilepsy at the age of 6 years old .She has been on different kinds of meds .Did have her doing well untill April 26 ,2006 untill she had back to back seizures at school . Doctor upped her meds and was doing okay for about amonth then she started getting tingling numbness in her mouth. It last for just about 2 to 5 minutes then stopped . Then on June 25th we was at church and the tingling numbness started and my daughter poked me and said her mouth was starting it again ,so we went down to the lower level this time it got worse and we had to go to the hospital cause she went into aseizure,her neuro doctor upped her med again . After that she has been doing was doing somewhat okay ,tingling numbness stopped happening. Then on July 26th tingling numbness has been starting up again . I called her neuro doctor and left message for his nurse but is waiting for a return call back . She had her med blood levels drawn about 2 weeks ago and is waiting for her neuro doctor to call me about that also . The last time I talked to his nurse she said he may want to raise her meds again after her gets her med blood levels back . I have somewhat been on pins and needles waiting . I just wish i knew what is causing this tingling numbness.There is times when I feel mentally and emotionally drained but inside I know I need to be strong for the sake of our daughter.
Comments
Re: Hi Bobbie: Two weeks is a
Submitted by Bobbie on Fri, 2006-08-18 - 01:13
First of all i would like to say sorry i have not answer back . I would like to email you some time and would like to add you to my buddy list ? Thanks.
Re: Re: Hi Bobbie: Two weeks is a
Submitted by Celtgirl1973 on Fri, 2006-08-18 - 22:18
That must have scary by having to wait to long for an answer. The first time I made the mistake of not making my sister take me to the emergency room after suffering a grand-mal seizure while we were driving home. We had already switched drivers because I started to black-out. The very next day I went to see the doctor. He talked to my sister about what happend while I was unconscious. An MRI & EEG were scheduled immediatly than I was referred to a neurologist. Having heat exhaustion was a trigger because I am congenital hypothyroid as well. The parathyroid is the body's temp. regulator. This often makes the person sensitive to temp. changes. Wishing you and your family well & make sure you continuously check up on the doctor's office for results. The more you bug them the quicker they get to work on your child.
Heather
Hi Bobbie: Two weeks is a
Submitted by mjsmom on Wed, 2006-08-02 - 05:14
Hi Bobbie: Two weeks is a long time to wait for levels...I would call her neuro again to follow up...you called on the 26th and he hasn't gotten back to you yet? I usually wait 2 days (unless it's an emergency of course) and then I call again...I can't wait for an answer when I'm worrying all the time! I know what it's like to be on pins and needles...always on edge waiting for the "next time"...I have good days and bad days...my 8-year old daughter has complex partial seizures several times a month...it's very difficult to see your child going through this. There is some wonderful support on this site...it has helped me get through bad days (last night being one of them). E-mail me any time if you'd like...