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hi I am new to the group
Mon, 11/20/2006 - 22:00Topic: New to Epilepsy.com
Hi my name is Karen ,and I am Carsons mom. Carson will be 4 Nov,29 and was diagnosed with left and right temporal lobe epilepsy when he was 22 months . He had his first cluster of seizure when he was 18 months old . We have spent the last 2-1/2 years trying meds and adjusting them .Carson is now on a lemectal/valporic acid combination .We have achieved some siezure control with these two meds but not total control. However he only seizes 1-2 times a day now and they are usualy when he asleep. Carson also has a developemental delay where speach and mobility is limited .Before meds Carson was taking about 10-15 steps unassisted and was talking about 25 words .They have him assessed at around 17-19 months. I was just wondering if there is anyone else who have seen their child regress ? I am also interested in talking with other parents of children with epilepsy.
Comments
Re: hi I am new to the group
Submitted by Essie on Wed, 2006-11-29 - 03:31
Hi Karen!
I just saw your post, and wanted to reply. Then I realised it's the 29th, thus, Carson is four today! Congrats! I hope you have a lovely time with him on his birthday.
My son is 5, and he too has Epilepsy. He's also on lamictal. In the beginning when we started the meds, he definitely regressed. Especially memory (he couldn't remember tasks I just gave him), and socially and emotionally. It got better though. He's on the meds for about 3 and a half months, and I'd say the regression has stopped, and he's nearly back to what he was before the meds. Still some emotional effects left.
So I'm not sure if Carson is regressing due to the meds, or the seizures. It's probably a wait-and-see time for you, and it must be horrible. I would suggest that you take him for speech and behavioral therapy, if possible. Just to give him that little bit of help. Maybe now that the seizures is mostly controlled, his brain can start concentrating on learning tasks and language, other than trying to cope with seizures.
Good luck, I really hope everything will turn out all right for Carson. And enjoy the birthday!
Essie (mom to Nian, 5 and Meonie, 3)
Re: hi I am new to the group
Submitted by txrhb1 on Wed, 2006-11-22 - 01:04
Hi Karen, and welcome to the site. This is a great place to find people with similar experiences and make new friends, find support, etc. I'm so sorry that you are having to deal with seizures on a child so young. My daughter was 9 when diagnosed, and is now 23. We did see some regression at first, and almost always in the beginning of a med change. She did use special ed services to help her keep up, mainly because the meds caused her to be so sleepy, they gave her an extra study period to do homework. She did graduate high school, and is doing well now. She is going in on Friday for a VEEG, and we hope to gain a lot more info. Hope to talk soon. ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo