Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi everyone. New here.
Sun, 10/26/2014 - 05:56In May this year I had the first seizure of my life. It was a grand mal. I was hospitalized for 4 days and given every test you could imagine. They found nothing wrong. I'm sure many of you can relate to this frustration. They told me there was no point in putting me on medication, that it was likely just a one time thing.
2 months later I have another grand mal. A month after that, guess what? Another grand mal. I've been back to the neurologist who ordered another MRI and EEG but the tests alone were going to cost me $3,000 which I just don't have. And I thought what's the point in doing these tests again? What if they don't find anything again then I just wasted 3k.
The thing is though i'm terrified. When I have my seizures I black out, fall down, and start convulsing. I have been living in fear for so long now. I'm unemployed. I don't go anywhere unless I have someone's arm to hold on to the entire time. I can't drive obviously. But i'm sick of letting this rule my life. This is no way to live.
Anyways thank you for listening to me vent and any advice is appreciated.