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Help - Boyfriend has epilepsy & I'm scared

Fri, 07/22/2016 - 12:52
Please help. My boyfriend has had epilepsy since the age of 19. He was at work at the time he had his first seizure (grand mal) with no underlying cause detected. He has apparently been seizure free on the medication..but has had a few seizures throughout his lifetime when he has skipped pills. We have been dating 7 months now - I'm 22 and he's 26 and for the first time in our relationship, I woke up to him having a grand mal last week. Seeing him go through this has really frightened me. I lay awake for days after this occurred watching him as he slept in case it happened again. We believe it was due to missing his medication once again, although he cannot recall how many days he missed as he's just become too complacent with taking them now. I really care about him and love him so much but I'm struggling mentally to cope. I can't get the image out if my mind waking up to the bed jerking, foaming at the mouth and blue with him making horrible noises. I now have severe anxiety to the point I've been crying for days on end, not sleeping and sick to my stomach about it. This anxiety stems back to my childhood when my mum suffered from severe migraines and was bedridden with them for weeks on end. I saw her go through hell with it and only remember her room looking like a hospital with drips hanging everywhere. My grandmother took care of me and my 2 older brothers who would just play outside, but I was curl up on my grandmas lap and I'd be trembling. The anxiety has always been with me - I eventually developed severe OCD and a phobia of germs. I grew out of that but dealing with uncontrollable situations has always been at the back of my mind, and has now reignited from this particular event. I've seen my gp who has referred me to a psychologist and put me back on antidepressants I used to take for my ocd. But my partner no longer wants to be with me. He can't deal with my anxiety and fear as I'm finding it difficult to stay at his house now. I really need help. I want to be there for him but I'm struggling mentally. I love him so much. I just need to talk to someone in a similar situation to learn how others cope. So many thoughts in my mind such as "has he taken his tablets?" "what if he has a seizure while I'm driving or while we're swimming in the beach?" "what about having children together in the future?" "What if his epilepsy worsens with age?" . Thank you in advance for anyone's response

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