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Hello! New to all of this...

Thu, 08/24/2006 - 17:24
Hi, My name is Colleen and I have had a total of 3 seizures my entire life. I am 28. The last 2 have been in a year. The first one was when I was 13 when I was playing a video in an arcade during the summer. I had another one last July while playing a PSP (hand held video game) July 2005 after standing outside for most of the day in the the California desert. The next one was this Sunday morning after spending Saturday night drinking a lot of wine and beer (Irish wake.) I am on Topamax. I was trying to pretend that nothing was wrong with me, but so much with that. Colleen

Comments

Re: Hello! New to all of this...

Submitted by angelsdeath on Thu, 2006-08-24 - 20:56
Hi Collen, I have heard that the lights from arcade games and PSP games can make you have seizure activity but Im sure it was already there....Good luck with everything!

Re: Hello! New to all of this...

Submitted by txrhb1 on Sat, 2006-08-26 - 16:47
Hi Colleen, There's a great article on photosensitivity on the main site, at http://www.epilepsy.com/articles/ar_1141663451.html that might be good to read. I'm sorry to hear you have had another seizure. I know that for me, any type of liquor is almost sure to produce a seizure in me. Good luck, and I'm glad you've joined the site - it's a great place to make friends. ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo

Re: Hello! New to all of this...

Submitted by GodivaGirl on Sun, 2006-08-27 - 07:30
Hi Colleen, Hang tough. I've had seizures basically since I was 5, and am now 32. Question for you since you seem to enjoy video games (I have a Nintendo DS...PSP was too expensive at the time!) My boyfriend (we're common-law) has 2 game system and wants either an X-Box or a PS2 next. So, just wondering do you take breaks when you play games? We got me a DS because my boyfriend likes the shooter/fighter games, and I like more of the puzzle stuff and super mario type stuff. So, he plays shooter fighter stuff...thing is, he could play for 2 hours or something. I'll watch him off and on, but every 20 min. I walk away and do something else for 10 I've been told whether I'm playing or watching the games, take frequent breaks. As for your other seizure - well, seizure meds and alcohol don't work well together. You'll get told that quick by doctors. Just don't go down the same road I did. I got told that when I was 19, so I stopped taking the meds and went out drinking instead. If you haven't been on Topomax long, some of the side effects can really hit hard (i.e. weight loss because you don't feel like eatting, tingling sensations, pop tasting like metal). I've been on it for about 3 years, just about to switch to Keppra because my neuro thinks that might work better for me (Topomax was the new one when I was put on it, now Keppra is new). Good Luck and Hang tough. Erin

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