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hello I'm new here also
Tue, 01/30/2007 - 13:24Topic: New to Epilepsy.com
I have a 4 year old son, He was 3 months old when he started having seziures. He has had EEG,MRI,and alot of other testing that I couldn't understand.The doctors couldn't come up with a digonis for him.It's very upseting because I can't get any help.Everything I try to get help and I can't ever get anywhere.Next month he will be going in for another EEG,MRI. I said something to his neurogist because nothing has been done since he was 3 months old.I'm worried about what might come out of it.I never talked with anyone about my problems before,but I am geeting depressed about everything and I don't know what to do.
Comments
Re: hello I'm new here also
Submitted by 1aussiemum on Tue, 2007-01-30 - 20:09
Hi, I am also new, it is important to talk about your fears when a child is unnwell or has something going on that you don't understand, if you feel that you are getting depressedm you may need to see a counsellor to help you deal with all the emotional issues that goes along with a child with a chronic illness/disorder. I have three sons and have been through so much with the younger two but was lucky enough to have wonderful family support that got me through the bad times.
Is your son on any medications for his seizures? What sort of help are you looking for with him? If you can give more specific information regarding the type of help you need, others here may be able to better advise you. As you probably guessed from my signin name I am Australian so our system is very different so all I can do is offer emotional support and let you know that I understand how it can all get on top of you and bring you down.
Sue, New and confused
Re: Re: hello I'm new here also
Submitted by siefke9 on Wed, 2007-01-31 - 20:11
hello,I'm glad you responded to my letter.He takes topmax,depokate.prevacid for reflexing.I can't believe how there isn't any fincial help for him.HE does recieve SSI when me or his step-father don't make over the limit at our jobs. I think it's not fair that what my son gets depends on how much we make.I wish I had one wish,it would be for my son to beable to walk and talk.well that's again for your words.
Re: hello I'm new here also
Submitted by nugget on Tue, 2007-01-30 - 15:43
we have the same problem as you do, but the doctor don't know what i have and it does get depressing going through all the same test multiple times and yet they still are not sure what i have. and i know that it take a toll on me and my parent. idk it feel like that my parent gave up awhile ago and it feel like i'm the only one in this battle. but i'm 19 i should be able to handle some things on my own but sometime it be good to have your parent full support. and since your son is young and he doesn't know what half the stuff the doctor are doing it is good that you have to stay strong so then he doesn't get scared.