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FIRST POST .RNS TRAIL?
Wed, 03/15/2006 - 14:37Topic: New to Epilepsy.com
IS ANYBODY HERE GOING THROUGH A RESPONSIVE NEURO STIMULATOR CLINICAL TRIAL?I'M STARTING IT MARCH 30TH.I PRETTY EXCITED.ANY PERSON HERE ALREADY HAVE THE IMPLANT?HOW ARE YOU DOING?WHERE DID YOU GET YOURS DONE?I'M GETTING MINE DONE IN MADISON,WI UW HOSPITAL.
Comments
Re: FIRST POST .RNS TRAIL?
Submitted by doezer on Sun, 2006-04-16 - 16:12
Greg9130, when you say "starting it," does this mean the sz diary or the implant surgery? You're not going to find a lot of postings from people currently enrolled in NPACE, because they've been asked not to make detailed,on-line comments about the trial.
Whoever is cordinating the trial at UW should have told you this. There are a number of NPACE patients who exchange information outside of chatrooms. Ask the people who are running your study for more information on this. They should tell you it's alright to e-mail privately with others in RNS trial.
If you go back and look at postings from 2004-2005 for "neuropace," there are a lot at the beginning, and very few later on.
Re: FIRST POST .RNS TRAIL?
Submitted by Anonymous on Thu, 2006-03-16 - 13:47
Sounds exciting - keep us posted!