false hope??

OK - I am 32. My MRI shows nothing out of the ordinary, no lesions, etc. to help a doctor out in that respect. For me, it is my EEGs that seem to show something & even sometimes they will come back normal. Other things cause seizures (stress, etc) One thing though, your son is 8. While it is a slim chance it is a possibility that he may some day out grow seizures. I was diagnosed at 5, off meds at 12, been back on 'em since I was 16 though. My question to you is why not follow doctors orders and try to cling to the hope that the medicine will do it's job, and maybe he will outgrow this? Not following doctors orders will only hurt your relationship with your son later, and it gives you nothing to stand on if he doesn't outgrow seizures. For me there were a few ages that were tough growing up - My parents followed doctors orders growing up, and I still broke enough of the rules along the way (drinking & partying on seizure meds at university being one of them). If you decide not to follow them & your son doesn't out grow seizures. The first time a doctor says "he can't because of seizures" it will hit you harder. Also, if your son doesn't take that drug (Tegretol) as prescribed and a neurologist sees no improvements quick they're only going to start prescribing the more powerful heavy hitting drugs, that cost more. Tegretol cost me about $80cdn a month when I was on it. Lamictal (really new to the market when I was 22...) $550/month Went off that back to Tegretol Age 27 -- Topomax $175cdn a month Now, it's on to Keppra - $225 cdn a month Each med, just a bit more powerful than the last, carrying just a few more side effects, and a bit more added cost. They're starting your son out on one of the "softer" meds from what I've been on. If I were you, I'd try to follow doctor's orders and cling to the fact that maybe the meds will do their job and your son will get what most epileptics want - a life that is seizure free. OR - You should be thankful that you have a neuro to recommend things, and that your son has a doctor. Don't know where you're from, but in Ontario it is nearly impossible to get a doctor and see one unless anything is seriously wrong. So, if you are in Ontario, at least check in with the neuro & tell them what you're up, very few are taking new patience & I'm sure the next in line would be grateful. To give you an idea if you're not from Ontario - They've closed one ER near me (short bus ride away) indefinately because doctors are overworked. They just privatized another ER (next city over) and doctors are thinking of walking out. My boyfriend of 5 years (we're common-law) can't even get a family doctor because there is a wait list of 35,000+ people in a region of about 300,000 people to get just a GP. Your GP/Family Doc refers you to your neuro here, and there's probably a tonn of people who would love to at least have a doctor. If I leave my family doctor's office (who I hate) I loose the referral to my neuro in Toronto (who I like). So, while maybe you're clinging to false hope not following doctors orders. Think of the parents out there that can't even get in to see the doctor to find out what's wrong in the first place. Seizure patterns for me always change, there are many reasons - stress, hormonal, weather, routines, caffeine..but I still take meds. Doesn't mean I wasn't a sports kid (hockey, baseball, swimming, skiing, just to name a few), that I didn't graduate university with a decent average. Seizures don't have to be life ending. And, really you're probably doing more harm than good by not following doctors orders. After all, what is that teaching your son? Later in life, if anything happens, do you think he's going to follow doctors orders when he should? Probably not. Doctors do know what they're doing, sometimes. Get the prescription filled and cling to the hope they picked the right one the first time and your son is seizure free.

glyconutrients are needed by the cells for their communication with each other. you are on a good thing here, but unfortunately you were not told to be patient in getting results. because you are feeding the cells what they need to operate properly you cannot dictate the exact outworking of their repairing the body. it is not a drug that works on the body and stops the symptoms, it works at the cellular level to repair. Time and patience are the order of the day. Contact the person who supplied you with the stuff and do more research so you can be confident that positive work is happening at the cellular level. the body is an amazing creation and can be trusted to do what needs to be done, provided you feed it and treat it properly. Be encouraged to continue, have patience, have hope. Cheers!