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Epiletiform discharge
Wed, 04/19/2017 - 15:59Topic: New to Epilepsy.com
My son is now 7 yr old. I remember clearly january of this yr, 2ndweek, he went home one afternoon saying his head is aching. He has a habit of jerking his head to know if his head is hurting. If he jerks his head and dont feel anything he would say nothing. But when he jerks his head ang felt something he wud say to me that his head is hurting. On the 2nd day he comes home again saying his head is aching. And on the 3rd day when he complains to me his head is aching i noticed something weird. He is starting to blink his eyes constantly. I told him to stop and even told him that i wud spank him if he wouldnt stop for i was scared it wud bcome hs mannerism. But as the day goes by, i noticed that he cannot stop himself from blinking rapidly. I had him checked after i heard him say one time while he is watching tv. "oh there it goes again! I feel so dizzy its like im in the siso" i was so scared when i heard him say that. I first went to the optamologist after being advised that maybe it is bcoz of his eyes having astigmatism. But the optalmologist said my sons eyes are in perfect condition. And he advised me to go see a neurologist.But beacause our place is far i was not able to do that right after.
He celebrated his 7th bday last feb 24, one month after that blinking period i noticed that it is gradually fading away and his blingking of eyes are getting normal but to my dismay he is having another as i thought as mannerism. He keeps on jerking his head. The one he used to do before when his checking if his head is aching. And this time he is doing it rapidly. Every after 4 seconds he wud jerk his head and i noticed heis doing it even when he is sleeping.
I had him checked already by a neurologist because he is blinking his eyes and jerking his head at the same time. And his eeg say he is having epileptiform discharge during sleep.
Im sorry if my letter is long but i am so sad to know this for he is my only child and he is a bright child. Im scared that this would affect his development. He is just 7 yr old but he is now on his 3rd grade this comming school yr. I know that he is advance academically compared to others with his age, but what i noticed is that his motor skills were late. Because he cannot write properly. His writing is ugly and often writing like he has a dislexia. But when he can change the writing once i reminded him. And also his 2nd grade teacher told me that he is not listening in school anymore and is just playing all the time. And he cannot controll his anger.
His neurologist gave me dekopene and told me that he wud take this for two years.
Comments
Thank you @just_joe . You
Submitted by Richvillpad on Thu, 2017-04-20 - 12:37
Thank you @just_joe . You just don't know how im anxiously waiting for someone to response at my letter and gave me advise. Honestly i am hesitant to give him his medication. It was given to me by his neurologist as a sample and she gave it to me april 19. But untill now i am not giving it to him for the reason that i want him to undergo MRI first just so i know if that is what he really has. And also i am scared of the side effects.. The neurologist was not able to tell me the side effects of depakene. And to add it up my son was also diagnosed with primary complex.. So he has to undergo also for 6 mos. medication for his primary.. I am scared that if i this two medication combined together might affect his kidney and liver. But now i am scared and confused because i had this feeling that if i wud not give him his medication in seizure it may worsen but i still dont have enough money to let him undergo MRI. Though his neuro told me already that even if he hasnt undergo MRI he can take the medicine already coz he was already diagnosed with his eeg. Is it ok if i gave him his meds even thouhg he hasnt undergo MRI?
His head jerking may not be a
Submitted by just_joe on Thu, 2017-04-20 - 10:48
His head jerking may not be a habit. His blinking eye is not his doing. His dizzy feeling can land in the field with his head jerk and blinking eye, All of those are seizures or parts of seizures. His head aches and if the teacher sayinghe isn't listening in school was seeing him in a daydreaming state those too could be seizures. The epileptiform found on the EEG is electrical discharges that are hitting wrong. Those hits cause chain reactions. Those chain reactions are seizures or parts of seizures. All of the things you have posted are seizures or parts of different seizures.My epilepsy didn't show up until I was about 12-13. As for writting that is ugly mine was too and it could be several things. I was always a slow reader and still am. But that slow reading helped my memory. My ugly writting didn't keep me out of the Honor roll. It didn't keep me off the video crew or off the crossing guard. So relax a little he is like the other kids his age. Some will have problems in some things just as he will. Depakene is a good medication and works for many people. I used it some time ago. It reduced the number of seizures I was having. Doc and I wanted better control so I was wsithed to another medication. Please give him his medicatin as directed. If 2 times a day those times need to be close to 12 hours apart. Unless the neurologist said other wise. SIde effects do happen but they generally go away after the body gets used to the medication and it is up to the therapeutic levels the neurologist wants. That therapeutic level is to help keet a breakthru seizure from happening id a dosae is taken hours late or missed.I hope this helps and he gets seizure free...Joe