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Do we understand this problem

Wed, 05/03/2006 - 23:33
This will seem unnecessarily philosophical to some but I'm sure to many there is the nagging question as to what all this amounts to. What I mean is: epilepsy seems, even with refinements in terminology, an extremely difficult condition to define. This may be due to how the condition is expressed in each individual; it may also be that there are several conditions lumped together under a single concept. It would be an interesting project if we could put together the defining characteristics of this condition from members here and see if there are aspects not covered in the standard descriptions. I'm not sure yet whether I suffer from epilepsy but it's beginning to look that way. In my case, apart from what looks like simple partial seizure activity I have had a lot of trouble with anxiety and depression going back 30 years. I am 58 and can point to one classic simple partial episode complete with olfactory hallucinations ten years ago. I was in the midst of a major anxiety-depression epsiode at the time. Because anxiety and depression are so common these days no doctor I've talked to ever suggested that epilepsy might be the important factor. I suspect that there is a very large number of people who have neurological "abnormalities" that play havoc with their lives but which are just below any seizure threshold and so never or rarely make themselves manifest as a condition. Summary: Despite convenient and useful labels (simple partial, tonic clonic etc) there is much that remains unclear. Do others feel this way?

Comments

Hi Ralph, "...epilepsy

Submitted by solis on Thu, 2006-05-04 - 00:39
Hi Ralph, "...epilepsy seems, even with refinements in terminology, an extremely difficult condition to define." http://www.epilepsy.com/101/ep101_symptom.html "It would be an interesting project if we could put together the defining characteristics of this condition from members here" http://www.epilepsy.com/epilepsy/types_seizures.html "Despite convenient and useful labels (simple partial, tonic clonic etc) there is much that remains unclear. Do others feel this way?" Quite the contrary, in comparison to the past more is known now that ever before. Given the % of people with epilepsy vs the % of people with diabetes, more work will be done for diabetes, but I still expect to continue to see knowledge of epilepsy evolve over time. "Despite convenient and useful labels (simple partial, tonic clonic etc) there is much that remains unclear. Do others feel this way?" We already know there are more than 40 manifestations of E, and TLE has as equally a psychological effect as it does physical. ~sol

Re: Do we understand this problem

Submitted by angel_lts on Thu, 2006-05-04 - 08:14
Yes I do too. There can be alot of different issue for people that seem or MAY be epilepsy. Like migraines, anxiety, depression.. and these can be part of epilepsy too. Meaning many of these issues, along with other problems cause or make peoples epilepsy worse. Yes people are miss diagnoses because of some these problems also. My daughter has anxiety and I was just talking about getting her checked for epilepsy. Many years ago I had her checked and she was fine. SOmetimes the MRI and EEG can not see the area that is a problem. She now has alot of blinking, which I know can be low on many vitamins too that she is taking. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Do we understand this problem

Submitted by Ramblinman on Thu, 2006-05-04 - 08:48
Hallelujah!!!! Don't have much time now so I'll more write later but I totally agree that this is an extremely difficult condition to define unless your symptoms are absolutely textbook. Too bad the brain doesn't always conform to the 40 or so textbook breakdowns. If it did my life would be a lot easier.

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