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Depakote Levels high, should I be concerned?
Wed, 02/07/2007 - 17:00Comments
Re: Re: Depakote Levels high, should I be concerned?
Submitted by jmccand on Sat, 2007-02-10 - 07:59
Re: Re: Re: Depakote Levels high, should I be concerned?
Submitted by Anonymous on Sat, 2007-02-10 - 10:26
To make communicating with the doctor easier, use a calendar to record side effects or unusual symptoms - mark the day, time and how long they last if you can. This can help the doctor or nurse tell if the problems are related to a drug, dose or maybe even the seizures! You can use a journal or computer notes to keep track of sxs or just write down on a seizure calendar. Here's one to use for now. I'm working on one specifically for meds that hope to have up soon.
Keep up asking questions - you are the mom and your child's strongest advocate!
Epi_help
To make communicating with the doctor easier, use a calendar to record side effects or unusual symptoms - mark the day, time and how long they last if you can. This can help the doctor or nurse tell if the problems are related to a drug, dose or maybe even the seizures! You can use a journal or computer notes to keep track of sxs or just write down on a seizure calendar. Here's one to use for now. I'm working on one specifically for meds that hope to have up soon.
Keep up asking questions - you are the mom and your child's strongest advocate!
Epi_help
Re: Depakote Levels high, should I be concerned?
Submitted by spiz on Fri, 2007-02-09 - 18:06
Lori, The doctor should take the time to explain what and why he considers anything to be normal or not to be worried about if he knows that it concerns you. The key question to go and be armed with is - 'Why'. I have driven my docs nuts over the years with that one word but I'm not leaving until I a good explanation. I know it had to be frustrating that he didn't explain the what's and why's. It would have taken only a little of his time and eased your mind much. Depakote is broken down (digested) in the liver. This can cause a fluntuation in the levels, some times more than others, as the liver metabolism can be fast or slow in digesting the medicine at different times. Being 7 points higher wouldn't be enough to readjust her medicine I wouldn't think. But at her age, I would think he would have wanted to redo her levels in two weeks or a month. I'm not a doctor by any means but have been on Depakote for 16 years. I am simply going by how the doctors have always been by my own levels and their explanations. You might call and ask why this level is considered nothing to worry about. Ask whoever calls. Call again and again until the doc calls you back. Get that reputation as one who will not be put off so in the future the doc will take those few extra minutes to explain what ever needs to be explained. My neuro told me there is a normal range. Then above and below the normal range is a 'caution range'. Above and below the caution range is the 'red flag' range. But I am an adult, I don't know if that is the same for a child. The headache, decreased concentration, poor school work, and insomnia are Side Effect of depakote. The decreased concentration and poor school work are a result of the tiredness. The insert that comes with the med has alot of info also. If her medicine came without one, ask the pharmacist for one or if you have Adobe Reader you can read the insert for the Tablets or the Sprinkles . I hope this helps. Never hesitate to keep looking for a doctor who you and your child can have a good rapport with. It makes a whole world of difference all the way around. I hope this happens for you! :) Take care! -Spiz