Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Confused
Thu, 06/16/2016 - 08:53Topic: New to Epilepsy.com
Hello all,
I am a 23 year old female. I was diagnosed with partial seizures when I was 17 and went through just about every possible medication.at this time I had a lot of memory loss which led to hazy recollections of which medications helped.
Now I am 23 and for the past 2 years I've had increased "staring spells" leading to car accidents, memory loss up to a week, and cognitive concerns. I have daily migraines and a cyst in the center of my brain; both of which may or may not be related. My neurologist put me on .5 Klonopin for management purposes but I have been on it almost a year and think I now have built a tolerance to it.
Is anyone else living with partial seizures? Any tips (including medication or other treatments)? Please tell me your story so I know I'm not alone.
Comments
Look up Cleveland clinic
Submitted by 9liv3cat on Sun, 2016-06-19 - 11:06
Look up Cleveland clinic neurosurgeons just to learn about options for cysts removal.
So 17 to 23 means 5-6 years.
Submitted by just_joe on Thu, 2016-06-16 - 12:36
So 17 to 23 means 5-6 years. diagnosed with partial seizures. went through just about every possible medication. for the past 2 years I've had increased "staring spells" leading to car accidents, memory loss up to a week, and cognitive concerns. I have daily migraines and a cyst in the center of my brain.. on .5 Klonopin for management purposes but I have been on it almost a year and think I now have built a tolerance to it. You are not alone.. It has taken me a lot of time but rather then 2-4 seizures a week. and those lasting 5-8 minutes and post ictal time another 15-45 minutes we have gotten them down to a seizure every 8-14 days lasting 2-5 seconds.As for telling you my story it is way too longAs for medications I have been on almost every medication and lots of combinations of medications. That also means all their generics. Consider the fact that I was diagnosed back in 1964. Technology has done wonders and medications today are a lot better then they were back then. Today neurologists have specialties and the ones you need to be going to are neurologists that specializes in epilepsy. They a know more along with knowing other procedure that can help control your seizures. Todays medications have fewer side effects too.I hope this helpsJoe