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Complex Febrile Seizures Evolved To Nocturnal Seizures?

Mon, 08/29/2016 - 00:23
Hello, I am new to this site and am trying to grasp as much knowledge as I can about my daughter's new prognosis with Frontal Lobe Epilepsy. Our daughter began having febrile seizures just after her first flu shot at 6 months old. The seizure was complex and lasted for aprox. 45 min. Her seizures have always come on with a fever before, sometimes there were multiple with an illness. But most recently she had a seizure not associated with a fever while on a play date at a friends house (90+ degree temp, playing on the trampoline, possible dehydration). We have always been told she'd grow out of them by 5 or 6, but she is now 7. Because the last seizure happened without an apparent illness or fever, we called the neurologist and had a 1/2 hr sleep deprived EEG performed. The results threw my husband I for a loop, nocturnal seizures and FLE. Currently we are trying to get a second opinion, and find a neurologist who is better at his patient/parent explanation skills. We left the appt. with a prescription for an anticonvulsant but no sense of understanding. I've been told that the best way to identify nocturnal seizures is with a video polysomnographic or an EEG sleep study that runs at least one night, but possibly several days. Any suggestions? Also, the problem is we have co-slept with her, her entire life, and yes, she has jerks and ticks in her sleep but I've never once seen or heard her seize up in sleep. So another reason I feel it might be best to do the video EEG or polysomnograhic is to better understand when the seizures are occurring and what they look like. Anyway, I'm feeling lost and just wondered if there was anyone out there in the place as us.

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