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aura's
Tue, 05/16/2006 - 14:16Topic: New to Epilepsy.com
Still trying to explain or the doctor want to hear it over and over again.
Strange scary feeling which makes you feel frozen so I relax also by looking at the wall or pictures to bring that awful feeling away. The doctors say get use to it but I can't. For 38 years and they still are scary and intense. SSI still trying to explain it to them. They mostly come 3 at at time, and then they get harder that day or for sometimes 4-7 days. Even though I am not awake for a seizure I still feel like I can't have one. Most times I think an aura is worse than a seizure.
Tammy
Comments
Re: Re: aura's
Submitted by ttammy on Wed, 2006-05-17 - 11:27
WendyBendy
gee when I was young I'd always find myself in the corner at school or at home I would run for the bed. In the sleep never don't know till I woke up with that funny feeling that something happened,all day would have aura's just about.
Re: aura's
Submitted by meskerkid on Wed, 2006-05-17 - 13:38
Hi Tammy
I know how you feel about auras. To me they are FAR worse than the seizure itself and the aftermath. It's a feeling of being out of control, out of reality and scared. Last week I was even hallucinating. I have trouble with my husband then too. I want him to be comforting and understanding. He is for the most part but seems slightly annoyed that I'm calling him to come immediately as I know a complex partial is coming on. He's even told me to relax, easier said than done but I try. Once he even told me not to think about it. "My brain is EXPLODING!" I asked him never ever to say that again as it made me realize how far away he was.
The other night he came in and said I have to leave, there's something on the stove. He said it like he was irritated. He could have said Sweetie, I'll be right back, I have to turn down the stove."
I'm thinking that he needs to talk with other husbands. I want him to be there, to be kind, he is both but I need him to do possibly more than he can. Plus, I can imagine that living with someone who has seizures once a month is not easy. Plus sometimes I tell him I have to calm down, I can't 'get intimate.' He doesn't see the connection between over stimulation and a seizure. I FEEL it but I can't explain it. I need to find him a support group online of other men going through the same thing. He'd see he's not alone and might learn ways to cope. As far as the doctors saying you'd get used to the aura? Sure, get used to feeling on the edge of what feels like disaster, your brain taking over and bringing you along for a horrible ride. You can't get used to that. As many times as I've had one it's scared me terribly. I know a seizure is coming. How do you get used to that?
Take care.
Nancy B.
Re: aura's
Submitted by WendyBendy on Wed, 2006-05-17 - 11:13
Tammy I have those horrible things, too. They are awful. From what I have learned here the aura's are actually seizures themselves. I have seizures in my sleep but I do get those feelings during the day sometimes. I had them when I was little and never knew what was wrong so I never told anyone. Now I have tonic clonics. Good luck. I feel for you and understand. I am here if you need to talk.