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Any idea's?

Fri, 07/08/2016 - 11:34
Yesterday I went swimming, I know its one of the things they tell you not to do when you've been told you have seizures unless you have someone that can pull you out. I didn't go unconscious in the pool or anything, but I did have something weird happen and just wondering if I could have had some sort of seizure that wasn't the convulsive kind. Our pool has big block patterns of the bottom of the pool and my nephew was making waves in the pool as I was cleaning the top of the water. The waves causes a change in the pattern at the bottom on the pool causing the sun to hit my eyes and not hit my eyes. I remember just blanking out I'm guessing I like froze in place for maybe like 10 to 20 seconds. I felt like I was there in the moment, but at the same time not. I pretty much picked up where I left off from that. My nephew is 10 so its not like he would know what happened. I continued to swim for like ten more minutes before getting out. I had the EEG and they did the light, but nothing showed up on the EEG when that happened. I've had similar instances like this where I blank out, one where I was in a car and don't remember half the trip in which is like a couple of minutes. I mumble, some I responded but very delayed or respond in a way or with words that make no sense, or go completely silent. Some I feel I've lost time and can't remember that it happened other times I am there, but not. I usually get tired about fifteen minutes after these happen and get a slight headache. Ones that last longer I can get a flu like feeling. Last time I talked to my epilepsy doctor he waved it off as "dissociative." At this point I had only told him about one instance because I felt it needed to be brought up and my dad had been present when it happened and believed that I should be seen because he said it was like I just left for a couple of minutes. After my doctor cut both me and my dad off he kind of shrugged off the whole event. He asked if I had had anymore like this I said, "No." Even though I had because I was taken back that he had said that that event could have basically been "all in my head." Half the time I don't even say anything to my parents when these happen and I would say these episodes and ones like the pool happen maybe once a month if that. I am on 3,000mg of Keppra and my night seizures have stopped which I am grateful for since I felt better than I've felt in years. More energy, less stressed, etc. Before keppra I feel like I had space out sessions way more frequently and since being on keppra they have decreased a lot. Has anyone had a similar experience? Its so hard because unless I'm speaking to someone and stop talking like I did with my dad no one registers that anything is happening other than you. I stopped calling the epilepsy specialist with situations like this even though they say to do that with anything you might suspect might be a seizure, but after the experience with the doctor I've just shut my mouth. I write the stuff down in a journal, but that's about it. Is it possible that it could be a medication side effect? Any advice would be appreciated. New to this whole thing and have just been reading up on epilepsy it never occurred to me that these stare sessions I've been having since I'd say been 18 might be something. If I hadn't have woken up in the middle of a convulsion one night I don't think it would have ever occurred to me that I was having a seizure. And I don't know how long I've had nocturnal ones I mean I had nights that my stuff was all over the place and I felt like crap when I woke up in the morning and felt out of it the whole day and had no idea why.

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