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Another new person =)

Fri, 08/25/2006 - 14:14
I have been having complex-partial seizures for 27 years and medicines have not worked. I now have been told that I may be a candidate for surgery. My seizures started the summer I was 11, following a severe, fast fever which a cause was never diagnosed. At first I called the seizures "spells" because I did not know what else to call them. I zoned out for a few minutes, had some changing with my breathing, and seemed to be "out of it" for several minutes afterward. My parents took me to a pediatric neuro. and they were told that it may be a tumor or possibly epilepsy...wasn't able to make a better diagnosis until after testing. We found out that I had "petit-mal" seizures. In high school, I was on Tegretol, Phenobarb, Dilantin, Inderol, and Elavil all at once. Led to a very busy social life (NOT! =)). However my seizures never interferred with a driver's license as my mother was able to guesstimate monthly if I had a seizure within the past 3 days. As I got older, my seizures began to only occur at night. Hence no problem with driving. When my husband and I found out that I was pregnant, we needed to look at some serious things. I was 12 weeks pregnant and did not know it, I was still having a period/spotting, I had been on the pill, and I had no other symptoms. We were told that we may have a Spina-Bifida baby, a Trisomy 18 baby, or many other serious defects. We decided to keep the baby. During my 7th month of pregnancy, I was driving to work and had a major seizure. I hit two other cars, and almost lost my baby due to pre-term labor. As luck would have it, Jacob is now 10. Five years later, we decided to try for another baby. This time we were considered a high-risk pregnancy and had all the necessary care. However, I did have a seizure while cooking and severely burned my hand. Adam is now 5 and both my boys are normal. I would like to talk with other people who have had a WADA test, and the residual effects. The more I know the better off I am since I am a possible candidate for surgery. Thanks

Comments

Re: Another new person =)

Submitted by stefie on Fri, 2006-08-25 - 14:19
Dshell- I've had the WADA test (surgery 4 years ago RTL) and no major effects from the testing itself. It's uncomfortable but really cool what they do... It's the side effects from the surgery that have been most problematic for me (moodiness, memory loss, concentration difficulties), but all in all it was a success and I haven't had any major problems since. Have they isolated your seizure focus? Is there a physical cause of your seizures? Mine were caused by a brain tumor (apparently had been there since I was born but not diagnosed till I was 26). stef

Re: Re: Another new person =)

Submitted by dshell on Sun, 2006-08-27 - 18:43
Stef, Thanks for the response to my questions. As of right now, I do not have a diagnosed reason why my seizures occurred, however it may have been triggered by a quick, high fever. I will keep you up to date with how I do with my WADA in 2 weeks. I am "anxiously anticipating" that day. Thanks again, Diana

Re: Another new person =)

Submitted by debbie1202 on Fri, 2006-08-25 - 17:27
Well it sounds like you had about the same seizures that I did-I use to call my seizures spells also. To answer your question about the WADA test, I went through the surgery and the WADA test was just like an EEG. They made me drink some liquid, so they could see my whole body, and then answer a lot of their questions but I didn't have a great migraine or a pain shooting through my body. I think that people think that is going to be a painful test but it really is not. I hope that you have good luck with your surgery-please keep me informed on how your doing. Debbie1202

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