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3 year old with seizures: Mommy's scared

Sat, 06/10/2006 - 17:28
My three year old daughter has Complex Partial seziures. Her Neuro at CHOP put her on Trileptal just about a month ago. Her seizures are under control now, but I am always fearing the worst. I don't sleep well at night (I recently bought a monitor for her room, and I can't hear her on it!) I check on her constantly and it's starting to affect my husband and I (you see, she is not his biological daughter) I'm so afraid that she'll have a seizure and I'll sleep through it, or I'll be watching a movie and won't hear her. What do I do? How do I go about living my life so that I can make hers better??

Comments

Going through one medicine

Submitted by Alexander17 on Tue, 2017-07-25 - 22:23
Going through one medicine after another. No medicine is helping partial s ezuires. He was diagnosed with Autism also. Does anyone know anything? I have been getting all kinds of testing and going to all kinds of doctors. Please help

Hi.. I've had complex and

Submitted by solis on Sat, 2006-06-10 - 18:02
Hi.. I've had complex and simple partials since I was three years old.. (= 49years) so please, please, relax. You aren't doing your daughter any favours by freaking out and that behaviour can generally be allievated via education & understanding. I would advise you to go to epilepsy.com and do some research. (The place is run by physicians so the information there is accurate) Here are some pages... Symptoms of a seizure http://www.epilepsy.com/101/ep101_symptom.html What causes epilepsy http://www.epilepsy.com/101/ep101_cause.html Complex Partial seizures http://www.epilepsy.com/epilepsy/seizure_complexpartial.html I promise you, the different or indicative behaviour you see when your child has a complex partial, are not signs of hurt or pain. Unless the 'after' situation enables the epileptic to 'conclude' others are reacting to seeing a seizure, no direct memory/knowledge of the event even exists for the patient. (Like those nighly dreams which we commonly lose memory of immediately upon awakeining). Please don't worry. All my parents worrying did for me was make me feel flawed. We all have something.. some are diabetic, some have no limbs, some have enornmous allergies... so please don't worry. Your daughter is now controlled. I'm happy for you both. ~sol

Re: 3 year old with seizures: Mommy's scared

Submitted by vrawls on Sun, 2006-06-11 - 07:49
Hi...I completely understand how you feel. I found my 6yr old daughter seizing in bed. I had no idea how long she had been seizing and I lost it! I swore I would never sleep again and I would sleep with her in her room or I would get a video monitor in her room so I could constantly watch her.....and then I took a breath. The funny thing is, as much as I beat myself up and as much as I felt I had failed her as a parent, afterwards she was completely ok. Just understand, you can't be with her or watch her every second of every day even though you may try...its impossible. I felt I had to share my experience, I hope it helped and didn't scare you further. Feel free to e-mail me if you would like to talk further vrawls@ci.dickinson.tx.us. You and your daughter will be in my prayers. All the best.. -V-

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