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10yr old in Africa

Wed, 12/27/2006 - 12:29
Hi, my son has been having horrible fits this week, we live in Senegal, and its difficult to get help. 2mths ago we were flown to South Africa and they did an MRI, and ECG they were normal, he had no seizures at all in South Africa so the Dr put him on Depakine and he has been taking 8ml three times a day, he weighs 37kilos. In the beginning the medicine seemed to work, but over the last 2weeks he has been having very powerful seizures, where his muscles lock and his body spasms..I emailled the Dr in South Africa and he said he must have a blood test to test his levels....this all takes so much time and his dr here in now on leave for the next week. My son is so tired and worn out from the strength of these episodes and I'm at a loss at what to do...do I increase his medication..I feel helpless living here, and hes getting so upset at his inability to control them. Any advise would help, I am a bundle of nerves at the moment. thankyou.

Comments

Re: 10yr old in Africa

Submitted by Frasersmum on Wed, 2006-12-27 - 13:01
I forgot to add, he is having around 7 episodes a day each lasting about 20-30secs.

Hi.. As somone who's been on

Submitted by solis on Wed, 2006-12-27 - 15:49
Hi.. As somone who's been on AEDs for many decades, and who had the worst reaction to drugs (in my life) thanks to Depakene, I'd respectfully advise you to get your son tested asap. Unfortunately, I have no idea what neurological tests or knowledge exists in African hospitals, but I'll happily give you some links, so you can do some research: 1) Seizures.. To know what type of seizures you see, read about the following and you'll (most likely) find something similar to your son. Truth be told, there are over 40 seizure types.. these are just the majority. http://www.epilepsy.com/epilepsy/types_seizures.html 2) Tests.. About the many tests that now exist: http://www.epilepsyontario.org/client/EO/EOWeb.nsf/0000/$seachForm?SearchView&Seq=1 3) Medicines.. http://www.epilepsy.com/epilepsy/seizure_medicines.html I wish you, and your son, the best, ~sol

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