Topic: My Epilepsy Diary

Created By: equatorlounge | 2011-09-30 16:42 | 1 Comment

Thanks for epilepsy.com for giving me this opportunity to start a discussion thread here... I'm fairly new to the fearful 'grand mal', occurring to me more or less twice a year minimum, ever...

Created By: Raffa22 | 2011-09-26 14:37 | 9 Comments

Hi everyone, I am really intested in finding out what others feel like after having a major seizure (Grand mal).

For me, they ALWAYS happen in the morning. I wake up dazed and scared....

Created By: Andrew Baker | 2011-09-23 12:26 | 1 Comment

I have registered on this forum in hope that someone can help me. I am from the UK.

My Mum started having "blackouts" in March. Shortly after she started having what were called seizures...

Created By: butterfly17 | 2011-09-22 14:23 | 8 Comments

DEAR FRIENDS,

 I HAVE NOTICED THAT, I GET PITTY AND SORO WHEN EVER I TELL SOMEONE I HAVE EPILEPSY!! HOW WOULD YOU DEAL THIS? IAM FED UP OF THE SAME OLD FEELING..

 

...

Created By: butterfly17 | 2011-09-22 14:23 | 0 Comments

DEAR FRIENDS,

 I HAVE NOTICED THAT, I GET PITTY AND SORO WHEN EVER I TELL SOMEONE I HAVE EPILEPSY!! HOW WOULD YOU DEAL THIS? IAM FED UP OF THE SAME OLD FEELING..

 

...

Created By: butterfly17 | 2011-09-22 10:12 | 1 Comment

I am a mum of one and I was young when i had her... My pregnancy went well due to my condtion. My question is this: When ever I try to  have another child can it effect my epilepsy? And if so...

Created By: Ma Wen Long | 2011-09-18 21:50 | 5 Comments

In addition to below:  My other seizures last only a few minutes from beginning to being concious again.  I wonder why I did not wake up for about one hour?  Any suggestions? 

Also, once...

Created By: ronzo9230 | 2011-09-05 07:26 | 3 Comments

Alright so morning everyone :),so im probally gonna have seizure right now so lets start the show,guessing being up for 3 days won't help lol.I fuckin hate lamictal it's such an annoying drug oh...

Created By: Ma Wen Long | 2011-08-31 22:54 | 1 Comment

I have read that because of epilepsy-ralated deaths, individuals with epilepsy have a mortality rate substantially higher than the general popoluation.  This is due to  SUDEP (or sudden...

Created By: Logantr32 | 2011-08-31 22:08 | 0 Comments

Hello everyone, I live with a friend who has EP and we have recently come across a rather interesting situation. He works 8 hours a day with no issues and his seizures are under control (he's had...

Created By: Chamsya | 2011-08-31 04:00 | 2 Comments

I'm leaving for video epilepsy monitoring in about seven hours and I need to download and print my diary for the doctor. But my diary does not seem to show complete data. For example, for the...

Created By: Ma Wen Long | 2011-08-28 23:07 | 0 Comments

I did not know I should drink very little, if any alcohol until my recent trip to Beijing.  The websites that I visited said that a little is ok - up to two drinks daily. Three pharmacists I...

Created By: Gena22 | 2011-08-28 07:20 | 0 Comments

Hi
i'm gena 20 years old ,,My daughter is 3 now and has been diagnosed with abscence epilepsy
when she was 2 and a bit. We are currently tryin her on the sodium
valporate...

Created By: Tmacmes | 2011-08-16 16:08 | 6 Comments

Hello all,

I have not had physical seizure in a few years, but I am having more and more "spells".  I had done some reading and have come to believe I'm having partial seizures,...

Created By: littshepkid | 2011-07-23 17:22 | 0 Comments

I have feel before and it is hard to c double vision and something I can't explain with my eyes

Created By: ZOOMA65 | 2011-07-22 03:24 | 1 Comment

this a call for help for however can help ,cause we knocked every possible door but without any help
we feel lost and so disappointed we feel helpless and guilty.

Thanks for your...

Created By: frith_p | 2011-07-16 11:59 | 0 Comments

i am having somekind of seizures on a daily basic or al least every other day  where i have a feeling come over me then i don't remember what happens.  my husband says i get a blank stare and...

Created By: screwupinthehead | 2011-07-15 21:23 | 0 Comments

Hello my name extreme epilespy

I have had it for 5 year's already and its not getting better isntead worse

I take 900mg of Dilatin Phenytoin because the epilespy i have...

Created By: vinnybock34 | 2011-07-12 13:40 | 1 Comment

Hello everyone, my name is Vincent and I'm new to the community. I have a unique situation and I'm just trying to figure out my best course of action. I'm 31 years old, I had my first siezure...

Created By: Csauntie | 2011-07-06 15:02 | 0 Comments

Hi,

I've been using My Epilepsy Diary iphone app for about a month and all was fine until a week or so ago when it stopped syncing with the on-line diary.  It doesn't matter where I make...

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