Community Forum

Topic: My Epilepsy Diary

Created By: Jacob0101 | 2012-04-22 12:46 | 0 Comments

I think a BIG help that my epilepsy diary could do for
epileptics and doctors to track seizure frequency is bring
Able to email or send the time periods of seizures from
Each...

Created By: NYU SLOAN FILM | 2012-04-10 02:03 | 0 Comments

Hi my name is Addison Mehr I am a filmmaker studying at NYU and am working on a film for the prestigious Sloan Grant along with a science advisor from NYUs Center for Epilepsy.

In the film...

Created By: megkenn001 | 2012-03-05 12:21 | 0 Comments

Hi there...Not new to epilepsy, but new to smartphones and this diary app. I set up a reminder, but for some reason get two every time it sends. any suggestions?

Thanks!

Meghan

Created By: Robertok | 2012-03-04 09:08 | 0 Comments

Hi,

 I have noticed that in the latest revision of the app, or possibly the last two revisions the medicines are duplicated in the medicines tab after making a change or adding a...

Created By: Gui123 | 2012-03-02 02:31 | 9 Comments

No matter how hard I try I can't help but to feel distant. Somehow I always end up being disconnected. I've
Made personal decisions as a person that really destroyed my reputation. There are...

Created By: alyssa18 | 2012-02-10 10:29 | 0 Comments

  I need some feed back if possible,  my daughter had the VNS sinse she was 5 5rs old.  and now she is 18 well be 19 in may,   This would have been the 3rd time that she...

Created By: Pony Princess | 2012-01-17 15:43 | 3 Comments

I have dreamed during seizures that I'm seizing and I've had outside acknowledgement that those are real, but I'm having crazy dreams that I think I'm having during my TLS and I didn't know if it...

Created By: iskonworld | 2012-01-14 02:02 | 0 Comments

I AM SUFFERING FROM LAST EIGHT YEARS & I LOST MY EVERY-THING BUSINESS, ENJOY, PLEASE HELP ME GIVING A JOB ANY TYPE, NOW THERE WAS NO ATTACK FROM LAST SIX MONTH WITH TREATEMENT OF A NEPALI MONK...

Created By: monjanse | 2012-01-12 14:17 | 2 Comments

when i choose seizure type, it doesnt show seizure types.

Created By: admin1 | 2012-01-04 09:56 | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: butterfly17 | 2011-12-19 14:24 | 0 Comments

Dear Friends,

Talking about epilepsy is very hard, for me... As it's always! Been a durty little secret :0( So I thought. Grwoning with epilpesy was taugh because I was raced in Greece....

Created By: butterfly17 | 2011-12-19 14:24 | 1 Comment

Dear Friends,

Talking about epilepsy is very hard, for me... As it's always! Been a durty little secret :0( So I thought. Grwoning with epilpesy was taugh because I was raced in Greece....

Created By: butterfly17 | 2011-12-18 16:11 | 9 Comments

   Well..... I have had epilpesy since, I was 13 months old. As years have gone by my fits have changed and now I get AURA'S  Which are woring signs.. They only times I get tridgees is when I am...

Created By: richie1 | 2011-12-09 11:57 | 4 Comments

Hi, my name is Rich and I have been dealing with epilepsy since 2004. Before 2004 I smoked marijuana just about every day for about 8 years without a seizure. One morning when I woke up I had a...

Created By: JessxCee | 2011-12-08 22:04 | 0 Comments

Hi.

Last night I was rushed to the er cause I had a seizure, or atleast I believe. I was diagnosed with epilepsy years ago, but have been seizure free for three years. Usually during my...

Created By: magentastraberry | 2011-12-04 14:43 | 0 Comments

I have had my first two grand mal seizures in the past two years. The first one was in August 2010, and the second was was recent, November 2011. My brain was scanned after the first seizure and...

Created By: Trina0201 | 2011-12-02 08:29 | 2 Comments

Hello, I am having a problem with memory loss and focus or as my husband says "air-headed" (just a joke).  I have spoke with my neurologist & he says that the medication will cause it.  My...

Created By: Genevieve34 | 2011-11-30 10:53 | 0 Comments

If I'm writing groggy, it's the clonazapam. I started having "episodes" remniscent of a tonic seizure when I was 17. That was 17 years ago. In that time I had every test under the sun done to...

Created By: djraymx | 2011-11-30 02:06 | 2 Comments

my daughter Emily is 7 years old, and has been having uncontrolled seizures ever since she was 6 months old.  after seeing tens of Doctors at some of the most reputable hospitals and clinics, and...

Created By: lilavootermann | 2011-11-24 00:02 | 1 Comment

I am doing a science fair project over the problems that people with epilepsy have to face in their daily lives. I’m working in a research lab and we are trying to develop a new method to help...

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The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.