Topic: My Epilepsy Diary

Created By: butterfly17 | 2011-12-19 14:24 | 1 Comment

Dear Friends,

Talking about epilepsy is very hard, for me... As it's always! Been a durty little secret :0( So I thought. Grwoning with epilpesy was taugh because I was raced in Greece....

Created By: butterfly17 | 2011-12-18 16:11 | 9 Comments

   Well..... I have had epilpesy since, I was 13 months old. As years have gone by my fits have changed and now I get AURA'S  Which are woring signs.. They only times I get tridgees is when I am...

Created By: richie1 | 2011-12-09 11:57 | 4 Comments

Hi, my name is Rich and I have been dealing with epilepsy since 2004. Before 2004 I smoked marijuana just about every day for about 8 years without a seizure. One morning when I woke up I had a...

Created By: JessxCee | 2011-12-08 22:04 | 0 Comments

Hi.

Last night I was rushed to the er cause I had a seizure, or atleast I believe. I was diagnosed with epilepsy years ago, but have been seizure free for three years. Usually during my...

Created By: magentastraberry | 2011-12-04 14:43 | 0 Comments

I have had my first two grand mal seizures in the past two years. The first one was in August 2010, and the second was was recent, November 2011. My brain was scanned after the first seizure and...

Created By: Trina0201 | 2011-12-02 08:29 | 2 Comments

Hello, I am having a problem with memory loss and focus or as my husband says "air-headed" (just a joke).  I have spoke with my neurologist & he says that the medication will cause it.  My...

Created By: Genevieve34 | 2011-11-30 10:53 | 0 Comments

If I'm writing groggy, it's the clonazapam. I started having "episodes" remniscent of a tonic seizure when I was 17. That was 17 years ago. In that time I had every test under the sun done to...

Created By: djraymx | 2011-11-30 02:06 | 2 Comments

my daughter Emily is 7 years old, and has been having uncontrolled seizures ever since she was 6 months old.  after seeing tens of Doctors at some of the most reputable hospitals and clinics, and...

Created By: lilavootermann | 2011-11-24 00:02 | 1 Comment

I am doing a science fair project over the problems that people with epilepsy have to face in their daily lives. I’m working in a research lab and we are trying to develop a new method to help...

Created By: decimalspace | 2011-11-20 23:31 | 1 Comment

I had a tonic-clonic seizure the other morning, during which I was conscious. I was coming out of a dream like state, in which I'd noticed my inability to speak, and by the feeling of the...

Created By: alyssa18 | 2011-11-18 08:57 | 1 Comment

  This Is for my daughter Alyssa,  that since she was 18 months old started with frebrial seizures.  due to her DPT Shot when she was 18 months old and today is has grandmal seizures,  with...

Created By: Psyche | 2011-11-17 01:43 | 1 Comment

when you have days/hours of feeling weird/ close to seizures/ off/ anxious/ something you now associate with epilepsy but do not define as a definite seizure how would you mark this in the diary...

Created By: Ma Wen Long | 2011-11-15 22:49 | 0 Comments

Hello

For reasons unknown to the pharmacists I have spoken to, twice valproic acid did not show up in my blood, and a few times it well below therapeutic range. My neuro did not seem to...

Created By: jpf566 | 2011-11-15 10:09 | 0 Comments

For the last 8 or 9 years I have been having an odd thing happen to me which I've learned to be a form of simple seizure. Many times when I stand up I will suddenly lose control of the entire...

Created By: Ma Wen Long | 2011-11-09 23:19 | 2 Comments

Hello everyone.

I saw a neurologist for the first time. He told me that one unit of alcohol per day (4 ounces of wine, one beer or 1.5 ounces of spirits) is fine while I am on medicine...

Created By: mariaj86 | 2011-11-02 04:53 | 3 Comments

I am 25 years old girl. I got my first attack when i was in 13 years old. The second attack when i was 18 years old. Since then I have being getting these attacks in around 2 - 5 months gap till...

Created By: Ma Wen Long | 2011-10-24 21:32 | 2 Comments

Hello everyone.

I had my first seizure was in Beijing where my wife is from January 2010. I did not recognize it as a seizure, and thought that it was an anomaly so I did not see a doctor...

Created By: kens mom | 2011-10-16 00:52 | 1 Comment

Hello..I am going to try and make this as breif and simple as possible, in July my son left for boot camp,a bout 4 weeks in he had a locker fall on the back of his head, within a week of that he...

Created By: butterfly17 | 2011-10-04 11:31 | 3 Comments

Hi  Guys

I fell alone anyone  there? I keep having AURA'S, due to my change of med and the heatwave....  Finaly the penny drops with my mum. She ALWAYS  goes into PANIC MODE  everytime I...

Created By: nsoeech | 2011-10-02 17:41 | 0 Comments

I suffered a closed head injury (concussion) about 2 months ago. I did not go to the hospital as I was in Europe. Two weeks later I arrived home and had an EEG which showed slowing in my left...

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