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Topic: My Epilepsy Diary

Created By: mer33@hotmail.co.uk | 2015-07-26 11:43 | 47 Views | 0 Comments

My son has had tonic clonic seizures only and has been seizure free for nearly 2years. His neurologist wants him to come off his meds but I'm not sure. He is 17 now and the seizures started...

Created By: KonaT | 2015-06-06 22:59 | 102 Views | 0 Comments

Is it going to happen now

Will I lose control

Will I leave my body

Who will see

Who will be traumatized

Will it happen now

 

How can I trust myself...

Created By: klmt1231 | 2015-03-30 13:57 | 230 Views | 0 Comments

Hey all well I just had a huge seizure November 24th 2014 and it damaged my spinal cord so I am no longer able to feel bellow my knees and I can no longer walk. I already was depressed with my...

Created By: gonesolo | 2015-01-22 11:26 | 419 Views | 1 Comment

I was wondering if there are plans to make the diary apps for the Windows phone? I currently use an Android and find the app great for managing my Epilepsy/medications but work phones are changing...

Created By: Amandaryne6 | 2015-01-14 23:30 | 404 Views | 0 Comments

So I was diagnosed with Epilepsy only 2+ years ago.  Just the basic Grand-Mal seizures, no other kinds or anything.  They came out of nowhere, and still are uncontrolled.  About 2-3 months ago I...

Created By: dfairchild33@tds.net | 2014-12-13 00:55 | 454 Views | 1 Comment

I was just recently diagnosed with epilepsy and am new to all the effects of tonic clonic seizures. I've had several in the past month. Is it normal to have jaw pain/stiffness. Like it's hard to...

Created By: mikkisixx | 2014-12-02 14:51 | 506 Views | 1 Comment

Hi everyone!

I'm new to the site and new to Epilepsy, so bare with me. I'm a 25 year old female.

Since I was about 15 years old I would have what I refered to as mini-seizures.I wasn...

Created By: blaisespeer@gmail.com | 2014-10-28 19:15 | 423 Views | 1 Comment

I'm a 21 year old male. Diagnosed nearly 3 years ago with myoclonic epilepsy during finals week of my first semester of university. Because of the stress of going through my degree, I had quite a...

Created By: toffee_torres@yahoo.com | 2014-10-06 23:24 | 368 Views | 0 Comments

    The bucket challenge has been used to sponsor and inspire donations for ALS. It has been in the media and has become an entertaining event to watch when celebrities and political personalities...

Created By: sammyc | 2014-09-20 01:07 | 434 Views | 0 Comments

hi. names sam. i had a conker thrown at my head causing me to go into a good half hour long focal tonic clonic seizure. ya know.. the one where ya go walkies and chat up all ya girlie mates then...

Created By: soldier mike | 2014-09-18 05:22 | 424 Views | 0 Comments

Hello. My name is mike and 24. I was diagnosed in the ER yesterday as having focal seizures. I have had headaches for a few years. They usually hit as a sharp pain to one side of the head and last...

Created By: goobear | 2014-07-31 10:33 | 553 Views | 2 Comments

I am new to this site and very much want to use the My Diary tool to track my daughter's seizures.  They are currently not accepting new registrations.  Does anyone know when the new version will...

Created By: bonniem | 2014-07-20 21:25 | 507 Views | 0 Comments
Created By: moodi.gfx@hotmail.com | 2014-07-19 06:50 | 526 Views | 6 Comments

hey ... 
well i am new here ..... i signed in like 15 min ago 
well .......... it's good to find people here who have the same thoughts 
... i am mahmoud"can be called moodi" i...

Created By: Dreadful Visions | 2014-06-25 14:28 | 635 Views | 1 Comment

I have been an epileptic for the better part of a decade now. I have seen how the medical sytem works, and how it treats you. Recently I had 2 seizures within a one month period and instead of...

Created By: andrewt1300@gmail.com | 2014-05-17 20:53 | 570 Views | 0 Comments

Tired sweating fatigue and muscles tightening been having them since I was five years old and now am turning 24 and get worse if anyone besides me is looking for a cure to it please give me ideas...

Created By: ninamverducci@gmail.com | 2014-04-09 10:05 | 853 Views | 3 Comments

This is the story of how the diagnosis of epilepsy affected my life. For anyone going through denial and/or depression caused by this disorder, I hope that this story gives you a glimmer of...

Created By: ninamverducci@gmail.com | 2014-04-09 10:04 | 695 Views | 1 Comment

This is the story of how the diagnosis of epilepsy affected my life. For anyone going through denial and/or depression caused by this disorder, I hope that this story gives you a glimmer of...

Created By: Fairy20 | 2013-11-17 12:55 | 1097 Views | 1 Comment

First my story: (I saw that you can put your story somewhere but everyone can only read it, so I put it also here)

Since 2011 I had 4? big insults. My first was on holiday in Germany. I...

Created By: rosanna1980 | 2013-11-03 13:55 | 690 Views | 0 Comments

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have...

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