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NO! I DON'T WANT PITTY..... I WANT UNDERSTANDING & SURPPORT
Thu, 09/22/2011 - 14:23DEAR FRIENDS,
I HAVE NOTICED THAT, I GET PITTY AND SORO WHEN EVER I TELL SOMEONE I HAVE EPILEPSY!! HOW WOULD YOU DEAL THIS? IAM FED UP OF THE SAME OLD FEELING..
BUTTERFLY17
Comments
Re: NO! I DON'T WANT PITTY..... I WANT UNDERSTANDING & SURPPORT
Submitted by Mallory3990 on Thu, 2011-09-22 - 20:02
Re: NO! I DON'T WANT PITTY..... I WANT UNDERSTANDING & SURPPORT
Submitted by ROCKNROLL on Fri, 2011-09-23 - 03:30
HI BUTTRFLY.......I AM VISUALLY IMPAIRED AND IT IS EASIER TO READ WHEN I USE ALL CAPS. (JUST TO LET YOU KNOW)
MY KIDS AND IN-LAWS ARE SCARED OF ME. THEY ARE ALWAYS ON GUARD IN CASE I HAVE A SEIZURE AROUND THEM. IT DRIVES ME NUTS! THEY ARE AFRAID TO HAVE ME AROUND OTHER PEOPLE ALSO. I SAY GIVE ME A BREAK, I DIDN'T ASK FOR THIS. THEY JUST DON'T GET IT. AS FOR OTHER PEOPLE, I JUST SAY I HAVE SEIZURES IN CASE I HAVE ONE AROUND SOMEONE AND LEAVE IT AT THAT. SOME ARE FINE AND SOME WANT TO RUN THE OTHER WAY, AND SOME HAVE TOLD ME I NEED A PSYCHIATRIST, BECAUSE I AM NOT HAVING SEIZURES. THEM, I GIVE A PRINT OUT OF ALL THE TYPES OF SEIZURES THERE ARE AND LEAVE THEM TO POUT!!
I WILL ADD SOMETHING ELSE THAT DRIVES ME CRAZY. I USE A SCOOTER, NOT BY CHOICE, OF COURSE. PEOPLE CAN BE 10 FEET AWAY FROM ME, AND START APOLOGIZING FOR BEING IN MY WAY!!!!!!!!!! GIVE ME A BREAK HERE OK! I FEEL LIKE PUTTING A BIG SIGN ON MY SCOOTER.......PLEEEEEEEEEEEEASE STOP APOLOGIZING AND DID YOU EVER THINK THAT MAYBE I AM GOING TOO FAST AND I AM IN YOUR WAY??????????????? OI!
I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN
I USE ALL CAPS FOR THE VISUALLY IMPAIRED.
HI BUTTRFLY.......I AM VISUALLY IMPAIRED AND IT IS EASIER TO READ WHEN I USE ALL CAPS. (JUST TO LET YOU KNOW)
MY KIDS AND IN-LAWS ARE SCARED OF ME. THEY ARE ALWAYS ON GUARD IN CASE I HAVE A SEIZURE AROUND THEM. IT DRIVES ME NUTS! THEY ARE AFRAID TO HAVE ME AROUND OTHER PEOPLE ALSO. I SAY GIVE ME A BREAK, I DIDN'T ASK FOR THIS. THEY JUST DON'T GET IT. AS FOR OTHER PEOPLE, I JUST SAY I HAVE SEIZURES IN CASE I HAVE ONE AROUND SOMEONE AND LEAVE IT AT THAT. SOME ARE FINE AND SOME WANT TO RUN THE OTHER WAY, AND SOME HAVE TOLD ME I NEED A PSYCHIATRIST, BECAUSE I AM NOT HAVING SEIZURES. THEM, I GIVE A PRINT OUT OF ALL THE TYPES OF SEIZURES THERE ARE AND LEAVE THEM TO POUT!!
I WILL ADD SOMETHING ELSE THAT DRIVES ME CRAZY. I USE A SCOOTER, NOT BY CHOICE, OF COURSE. PEOPLE CAN BE 10 FEET AWAY FROM ME, AND START APOLOGIZING FOR BEING IN MY WAY!!!!!!!!!! GIVE ME A BREAK HERE OK! I FEEL LIKE PUTTING A BIG SIGN ON MY SCOOTER.......PLEEEEEEEEEEEEASE STOP APOLOGIZING AND DID YOU EVER THINK THAT MAYBE I AM GOING TOO FAST AND I AM IN YOUR WAY??????????????? OI!
I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN
I USE ALL CAPS FOR THE VISUALLY IMPAIRED.
Re: NO! I DON'T WANT PITTY..... I WANT UNDERSTANDING & SURPPORT
Submitted by Chrissyml on Thu, 2011-09-22 - 17:18
Have you looked at the way you tell people that you have epilepsy and considered that that affects their reaction? I feel I get neither pity nor sorrow from others because of my epilepsy.