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My Story

Tue, 10/28/2014 - 19:15

I'm a 21 year old male. Diagnosed nearly 3 years ago with myoclonic epilepsy during finals week of my first semester of university. Because of the stress of going through my degree, I had quite a few seizures during my first 2 years of university and only a couple during my last year because of a lighter course load. I never (and still haven't now that I'm in law school) come to terms with my disorder yet. I'm not sure how to cope with this now. I used to make jokes about it and just shrug off the seizures as if they were nothing. I even pushed myself out of bed hours after having a seizure in order to take an exam because I didn't want to admit that I had a serious issue I needed to confront. For the past few months however, I haven't been able to cope and it has just spiraled down into depression and other serious problems. I don't feel like I can talk to anybody around me about this because I built up this persona before as the guy who just laughs it off and pretends that it doesn't affect me. I'm posting on here because I really needed to get this out. The seizures have been getting worse but I'm lucky enough that they usually only occur when I'm already in bed so no one has to see it. I'm scared to tell anybody how bad it really is. Everybody thinks I've only had around 5 seizures since I was diagnosed but I lost count a long time ago. I know I need help but I'm not sure how.

Comments

Talk to your doctor about

Submitted by Amy Jo on Wed, 2014-10-29 - 12:27
Talk to your doctor about ways to get better control and ask who they could sugggest talking to about your problems dealing with epilepsy. Taking charge of your health and learning more, even when it is a condition that one can't completely control, should help.

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