I CANT GIVE UP WE LOVE YOU "ZAIN"

Thanks for your time I really appreciate

In the attachment you will find the latest report
for zain by here treating physician that started here treatment from the
beginning. 

zain now is4 years old 20 kg  she is my
third I have 3 other kids how is healthy,  she was delivered as a full
term post Cesarean

no complication during and after delivery , normal
early child development,no history of epilepsy or seizure in my family
or my wife family .

at the age of 9 months we noticed that she is having sudden head falls and nodding that last for less than a second

this falls was happening 7-15 time separated by
few second in between and occurs 5-10 times each day we noticed that
cognitive wise she

is delayed from here age , we were directed by a
pediatrician to see a pediatric neurologist ,in the initial assessment
and EEG the physician

DX was benign myoclinic epilepsy and she was
started on depakene , the depakene dose was increased gradually and
lamictal was added followed by topamax

but without effect ,the symptoms was gradually
increasing and more noticeable the physician changed here DX to
myoclinic static epilepsy

she was then admitted to hospital and challenging
doses of metylpredniselon was given for 3 day topamax was replaced by
keppra ,by that

time debakene and lamectal was at the Max dose , methylprensolon oral was started for 2 weeks and tapered off but still without any

result .

we were directed by the physician to dietary department and she was started on ketogenic diet which was followed for 1 month

but still without any change. all here medication was then stooped and Finlay revotril was started .

in the course of treatment all here EEG result was
the same , here MRI was negative , metabolic function result was
doubtful,the  results was

above the cutoff but the physician mentioned that the results are not significant.

Finlay the physician explained for me and my wife that their is no other treatment option and nothing can be done now

the only thing that can be done is a palliative surgical intervention, in the last few month here sizuer turned to be much more aggressive tonic -colonic sizuer that last up to 2 minutes and she fall in to sleep  after that. she had many serious head trauma we are using a protective helmet she is not on any medication now we stop it all, cause only the side effect of the medication is appearing which make here condition worse 

thanks