Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Epilespy is hurting my life
Fri, 07/15/2011 - 21:23Hello my name extreme epilespy
I have had it for 5 year's already and its not getting better isntead worse
I take 900mg of Dilatin Phenytoin because the epilespy i have is very bad that i have trouble getting
around because sometimes i can't see properly and have poor balance so it's hard to walk sometimes
other times it feels like everything running around me,dizznes, sores in my mouth,sometimes i peel my skin because its already coming other times it feels like i have a rope around my head.
I can't work because i have poor eye sight,bad balance,also i statrted hear voices in my head ,had seizures,other times
when i goto sleep it feels like my heads on fire and have experienced this odd feeling that im not on earth when im sleeping even when im trying to get up i cant control my legs and piss in pyjamas so i go back to sleep until i feel like normal other days i have good vision,but bad balance,also see these blue auroas everywhere i go.when i Feel streesed it gets worse with no control of my legs
I apolgize for my bad writing to everyone,who reads this
It's hard living like this i hide my identity everyday because i want to be normal
I would trade my epilespy to live in a hard country like africa anyday if it was possible!......................